August 2012
Hi Cremm, I just wanted to give you a virtual hug. I can't imagine how difficult things are. (((hug)))
love Emily
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August 2012
Thanks Ron and Silly. Your insights were sobering and encouraging. I think the reason I was feeling so despairing was things actually seemed easier during his chemo (for our marriage, anyway). We were closer and stronger as a couple than previously. However, his job stress is putting more of a strain on our relationship than his cancer (and I know how ridiculous that sounds!)
We definitley still have good times together though. I'm feeling more encouraged and optimistic than I was a few days ago, and I'm sure we'll both be feeling happier after his next check-up (Monday afternoon). Now if we can get him into a better job, things would really improve!
Hope things are good for both of you.
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August 2012
Hi Jeaniel and Maddie, my thoughts are with both of you. My husband has been in remission for 12 months, so doesn't really need 'caring' at the momemt, but even so I'm starting to feel emotionally fatigued. I can only imagine how exhausted you both must be. I salute you! I hope things only get easier for you and your partners. Sending both of you supportive hugs. xx
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August 2012
My husband finished his chemo in November last year, and has been in remission for 12 months last weekend. He has his next 3 month check up on Monday. So far, everything is going well. His chemo was probably as gentle and effective as we could have hoped for. However, everyday life is still so hard.
Cancer is never far away from my thoughts, and added to this my husband has really bad job stress, which means he's not sleeping, and often moody and difficult to live with. I'm dreading the day he wonders why he bothered going through chemo, so he could be healthy enough to be completely miserable most of the time. We're no longer sleeping in the same room, as his insomnia was begining to make my life impossible. I literally can't remember the last time we 'were intimate' (not suprising, with all that's going on)and I'm wondering when things are going to get better. He went to a therapist for the first time on Thursday, to help him deal with his understandable anxiety and depression. However, she seemed completely ineffective- very 'airy fairy' (not his style at all) and I really wonder if that's going to help. I was so hopeful that therapy would make our lives easier, but it doesn't seem as if it will.
At the moment I feel quite despairing. The average length of remission time for people with follicular lymphoma is 17 months- he's already done 12 months, so the next (?however long?) is going to be quite nervewracking. Generally speaking, the approach taken for this cancer is 'watch and wait'- how do you live while you're doing that?
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August 2012
What a tough situation. I'd like to echo everything that Tatsoi has said. Warm thoughts for you all. Emily
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July 2012
Good luck sweetie! My husband finished his chemo in October last year (for lymphoma) How long does each round go for? I've messaged you my email address if you want to chat in more detail. I'll be thinking of you. love Emily
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July 2012
Woo hoo! Congrats! Enjoy every minute of planning your gorgeous day- I hope you feel like a princess. x
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July 2012
Woo hoo! Congrats! Enjoy every minute of planning your gorgeous day- I hope you feel like a princess. x
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July 2012
Hi Laura, I'm sorry you're in this situation- it must be really difficult.
This website might be a place where you can find others with this disease- or at least share feelings of isolation with others who feel similar. I'm in a completely different situation from you (my husband has lymphoma), but I've also felt isolated, and as if the people around me don't understand. It seems to be a fairly common theme when dealing with cancer- maybe we're not alone in feeling alone :~
I'm sending hugs to you- it's great that your hearing is fine at the moment! Long may it continue. love Emily
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July 2012
I feel like sharing, and I know people on here will understand. My husband, who has been in remission for NHL for 12 months, was referred to a psychologist today. As well as being diagnosed with incurable cancer last year, he has been having shocking job stress for 2 years, so I'm not suprised. I've known this would happen for the last few months; I've been waiting for him to be ready to ask for help, but I still find myself upset by it. Is that weird? If I've known for ages that it's going to happen, why do I still feel shocked that it has? Has anyone else had this experience? Emily
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