😞 so sad to hear, such a relief for him. xx Gbh's ... View more

Hi, Welcome, I wish you didn't have to join this group! I'm Mel, My husband Ben has a stage 3 astrocytoma brain tumour almost a year ago, it is located in the thalamus. It cannot be operated on, radiation has been completed (6 weeks) with no change, chemo (temadol) has just started with round 1 completed. We are in our 30's with 2 children, a 1 year old and a 3.5yr old. We are in Perth, so too far away for catch ups but I thought I would offer our story & support. He is on dex as well, and the BT coupled with dex- makes for a rageful husband. We have experienced all sorts of outbursts over the last year- some more terrifying than others. The fatigue, insatiable hunger, the ability to be easily confused, it is somewhat tiring. As you mentioned, cancer is number one. You as the carer, quite often put yourself last- for necessity. We are extremely lucky, we have been given time, we are utilising this time to "create memories" for our girls. The one thing that has allowed me to cope, is going to the gym. I joined a gym which has a coffee shop, beautician etc. I make myself go, and I feel so much better for it! Even if it is just to sit down & have a coffee & read the paper. Change of scenery- away from the thoughts "what tablets need to be given" "what food needs to be given" etc We have a hard road ahead of us, you & I both. Trust me when I say this- don't think about the future, don't worry about what it's going to be like. Yes, it is going to be shit- and all kinds of scary shit- but don't deal with it until you have too. Enjoy today, enjoy the moments of clarity & laughter. Relish in the moments where you catch a glimpse & smile lovingly at each other or snuggled into his chest. Take a deep breath, smell him, cherish him and all the things you love about him. Smile & know eventually this will be over, and you will be ok- eventually. ... View more

I hope you got positive news on your last visit xxx ... View more

I'm sorry you had such issues with your insurer- but I am glad FOS was able to help settle your claim. Hopefully you obtained the correct amount in which you were entitled to. ... View more

Maddie, the others have said it perfectly! You are amazing, such strength, you give me hope! You will continue on, and you will love again, but you will never forget him or the things he taught you. May 2013 bring good things to you! ... View more

That was a really good idea Stitcher- I must keep that in mind! And getting out in public, helps you to keep things together a bit more. I'm so so sorry for your loss Lorelei, I'm sure as much as it was a terribly emotional day, you made it through. I don't look forward to it, I can't imagine how lonely it is. I hope you had lots of family to hug on the day ... View more

Thanks Maddie, well I think im young 😉 30 and dear hubbie is 36. It's all fun and games for us- as the doctors are surprised he is still alive so I have no false hopes- just a pure wish & prayer that we will get a miracle. This is the only thing that gets me through each day with a smile on my face. I have 2 beautiful little girls who need me to be strong. I know I will eventually lose him to this nasty disease- I just don't want to just yet! But as cancer teaches you- no one is in control! ... View more

I'm so sorry you've had to come here- cancer is a bitch! Best thing I can suggest is to live each day as it happens, don't look to the future too much and try to not to think about the negative stuff. When cancer comes into your life it's a huge wake up call- you realise all of a sudden you had no control over your life. Great big hugs, I hope the chemo & rad is kind to you. ... View more