Hi Jenni I'm sorry to hear you have this terrible disease, I don't have the same cancer as you, I have bowel cancer with secondaries on the liver and lymph nodes, so i cant help you really I don't know enough about yours or much about mine to be honest but i just wanted to say I'm here to listen anyway, It's so much worse when you feel no one wants to hear or talk with you.. Take care Deb's ... View more

yes its very scary and daunting and just f*king awful if im being honest!!! I am still in disbelief at times I've also been told i cannot be cured! we need to prove them all wrong and show them that we can survive ! I have 3 wonderful adult children and 3 gorgeous grandchildren I want to see grow up We need to be as positive as we can and fight this horrible disease, I have only just started looking at the internet trying to find stories of good outcomes etc I was too frightened before in case i found things i didnt want to see ... I wish u all the best and that a miracle happens for us all ... View more

yeah I started with an infusion and then tablets for 2 weeks and 1 week off, I reacted very badly to the tablets and ended up in hospital for 2 weeks, then they put a PICC line in and changed it to infusion and then a bottle for 46 hours at home, Ive unbelievably better so far since the change 🙂 ... View more

yeah I started with an infusion and then tablets for 2 weeks and 1 week off, I reacted very badly to the tablets and eneded up in hospital for 2 weeks, then they put a PICC line in and changed it to infusion and then a bottle for 46 hours at home, Ive unbelievably better so far since the change 🙂 ... View more

Rusty I wish you all the luck in the world, I too didnt feel like i belonged here either, but yeah i have bowel cancer, liver lesions and lymph nodes, I dont feel as if i have ever had enough answers to my many neverending questions, so i will encourage everyone to to ask all they can, it is OUR body OUR illness and we must take charge as much as possible keep in touch if u so wish 🙂 ... View more

Hi Chris I'm only similar is that i have cancer but mine is bowel cancer, I don't know much regarding your cancer but I'm here to chat to if you would like to Deb's ... View more

So sorry to hear you are going through this Tarka627, it is undoubtedly one of the worse things people have to go through, to be honest the only thing you can do is to support her whatever the outcome, the chances of everything being fine is a very good chance, you will find a way of coping, most people do, we are surprisingly very capable at things that are thrown at us, yes she needs ur support but she can support you as you will need it too just from a different angle, just talk to her when u feel she is up to it, she may want that too good luck to you both, I hope it is a good outcome 🙂 ... View more

Hi Carlie sorry to hear your are all going through such a horrendous time, its such a cruel world sometimes I think its your dads way of having some sort of control surrounding his illness, I think he is just preparing himself for one of the ways it could go, I don't think think he is necessarily assuming that the worse will happen just seeing it as a possibility and wants to cover all basis maybe... try to see it as his way of coping, it sounds like its his personality traits that lead him this way, just keep supporting him and each other as best you can,.... most times there seems to be the positive people, the frightened scared negative people in each unit, maybe that's naturally what happens so the person gets something from each personality and for me there are times when one or more are needed from time to time... Take care my friend I wish u all well ... View more

hiya Amelia thanks for your reply, what exactly have u got and did they completely remove your tumor, how are you doing now ... View more

Hi Rose Im Debs Ive had one cycle of chemo, which consisted of an infusion and the 2 weeks of tablets but i got very ill taking the tablets I ended up in hospital severely dehydrated infections and ulceration throughout my stomach bowel etc Ive only been out of hospital a couple of days, I had a piccline put in 2 days ago and I have the next infusion next week how are u doing now ? ... View more