Hahaha Wombat yes, i can see that, i remember that frustration when nursing my years ago before she passed, (lung camcer and brain tumor) i would be like, omg if thats all you have to complain about. But hay its a huge lesson in compassion if nothing else, oh yeah and patience, and then more patience. And on your progress, wow from where you started yes that is positive, 💖 ... View more

Dear Madfisher60. Thank you for messaging me. It is comforting to hear from someone with a similar condition though as I understand it mine didn't metastasize into another organ (eg: liver) so no PRRT required. But this wait and see is stressful as you wonder whether they should be doing something to stop future spread given it did metastasize x 3 micro tumours into my lymph nodes. I was cut wide open this time as a previous surgery left me with incisional hernia and adhesions so the recovery from the NETs surgery has been slow.  Most days I wake up feeling awful. I am on a healthy food and fitness regime but I can't say I feel great. Everyone else in the family who follows my regime look and feel wonderful in days/weeks but I struggle with bloating, cramping, constipation or loose bowels, tension headaches, stomach pins and needles, nausea & mood swings ( get upset easily). If I overdo the exercise I hurt for days where the incision is. The surgeon blames my age ( female therefore menopause) and everyone else says I've had open surgery so don't expect so much! It has been 7 months since the surgery and 12 months since I found out I had NETs. I look forward to the day I start feeling better!! As for the support forum, I reside outside a capital city so the closed online forum sounds good. Thank you for passing this info on and I'm glad you are doing well 8 years post diagnosis 🙂 ... View more

Me too.   I get frightened to death some days,   I know my husband loves me and is so very supportive, but now and then nothing makes very much sense and I get to thinking really rotten thoughts.   I do hope that things have taken a turn for the better for you over time.   Life's not all that fair, is it?   I have no way of thinking that I have done anything to deserve all this crap.   Let me know how things have become for you sometime.  I need all the help I can get just now.   pinkroses ... View more

Hi Pauline, Three diagnoses of breast cancer in close relatives on your mother's side suggests a substantial probability that there is an inherited breast cancer gene on her side of your family. If there is, there's a fifty percent (one in two) chance you've inherited it. There's a lot of good reading on the internet about inherited breast cancer and genetic testing. My suggestion would be to quietly explore the information and discussions at the sites I've given links to below. That will put you in a much better position to make a decision about whether to go see a genetic counselor, and to have an informed discussion with the counselor if you decide to see one. I'd be surprised if they don't suggest genetic testing if that's what you want to do. Three websites where you can find very good articles and discussion about hereditary breast cancer and genetic testing are Breastcancer.org at www.breastcancer.org, the FORCE website www.facingourrisk.org, and the National Cancer Institute (USA) website www.cancer.gov. Here's how to find the info on each site. On the Breastcancer.org website, try this direct link www.breastcancer.org/risk/factors/genetics.jsp or go to their home page at www.breastcancer.org and click on the link 'Breast Cancer Risk Factors' (it's under the heading 'Lower Your Risk'), and then look at the links on the left side of the new page to see the range of topics covered. On the FORCE website, click on the link "Information and Research" on their home page www.facingourrisk.org where you will find links to a variety of good information. On the National Cancer Institute website, go to the Breast Cancer: Prevention, Genetics, Causes page at www.cancer.gov/cancertopics/prevention-genetics-causes/breast and the Cancer Genetics gateway page at www.cancer.gov/cancertopics/prevention-genetics-causes/genetics and scroll down the pages to find links to their articles. Good luck if you get tested and good luck with your testing Mystik73 🙂 Cheers - Ed Http://bestcancersites.com/breast/ ... View more

Hi Terrafirma, Thanks so much for your reply and for the link. This information has been really helpful and I now feel that the lump in my father’s neck is simply caused from his Lymphedema (he is having a biopsy this week which should confirm this). It appears Dad has been keeping us in the dark (probably not to worry us, however it only makes us worry more). The article has defiantly show that perhaps Dad's doctors are not completely aware of what they are dealing with and Dad most defiantly does not push enough or ask enough questions. Perhaps it’s time we talk him into letting us come along to his appointments with him. Thank you. ... View more

Hi Kylie, Here's a couple of suggestions for additional places to go on the internet in search of information and support relating to adrenal cancer. You can read about adrenal cortical cancer and its treatment on the American Cancer Society website in their section "Adrenal Cortical Cancer" at www.cancer.org/cancer/adrenalcorticalcancer/index and on the USA's National Cancer Institute's website in their section "Adrenocortical Carcinoma" at www.cancer.gov/cancertopics/types/adrenocortical. The Facebook group "Adrenalcortical Carcinoma - Adrenal Cancer" at www.facebook.com/groups/AdrenalcorticalCarcinoma/ currently has 902 members. It can be a tough battle when cancer spreads and I hope your sister-in-law is doing okay. Cheers - Ed. ... View more

Hi Mabelleigh, I just red your post and thought you may find this info useful. The American Bladder Cancer Society at http://bladdercancersupport.org runs a big and very active bladder cancer community forum. You can find it via their home page or this direct link may work http://bladdercancersupport.org/bladder-cancer-forum Ed. ... View more

It may be a while Silly. I found the following article on the ABC website on the page http://www.abc.net.au/health/thepulse/stories/2011/06/16/3218788.htm "Boys and the cervical cancer vaccine by Rebecca Jenkins A proposal for a national program to immunise boys with the cervical cancer vaccine was recently knocked back. So should parents pay for their sons to be immunised? Published 16/06/2011" Nevertheless I'm thinking that maybe the issue to knock the proposal back could be revisited reasonably soon as more people learn about the recent research implicating hpv as a common and rising cause of oropharangeal cancers, and the role oral sex may play in transmission. There's also the issue of men as well as women being carriers of the cancer-causing strains of hpv in the community. Also my guess is that a lot of the opposition among some members of the general public to a national program to immunize boys in Australia and elsewhere in the world is not based on the most recent findings. And in the USA the issue of vaccinating boys as well as girls is being used for some political point-scoring in the lead-up to the next Presidential elections and I really hope that doesn't happen in Australia. Thanks for posting that link Gabe! Cheers - Ed. ... View more

Hi Jan, I had chemo and radiotherapy for rectal cancer in 2000. Due to mine being a very aggressive genetic form of cancer, I have had numerous operations as well, starting with a total colectomy and removal of half my rectum in my mid 20's. I know all the fun of a "sore" bum, but hopefully you will have a fully functioning system post GETTING RID OF THIS CANCER treatment. Thank goodness that it has been found early. The chemo and radiotherapy that I did have worked - YEAH!!!! as mine was outside the bowel at the time. I have got a lot of scarring, but then I do have an ileostomy and that combined with the rest of the treatments have left an "impression". I also see a gynaecologist who has helped a lot post "all this". Bum jokes!!! I have lived with bum jokes most of my life, as our family diagnosis came out with my mother who finished up with only 3 inches of rectum and a lot of rushing to the toilet. There used to be a statement of "anyone need to go, go NOW!!" as she would sometimes be there for an hour or more, especially the first 12 months. My grandfather sometimes got upset at the "stirring" and jokes that were made of it, but that's what got her through. Let us know how you go, and if you need any assistance or humour, just get in touch. I am not sure how hard it will be for you to go through the combined treatments, as my bowel was already shortened and the effects would be different to yours. Good luck and keep in touch, hope this has been some help craftyone ... View more

I was excited when I heard this on the ABC last night. I just wish that there was something in Sydney. IS the new centre at RPA going to address this I wonder? S ... View more