Hi Frankie. I am due to have a PET Scan at Lincoln hospital this coming Wednesday 12th February 2020,I have been diagnosed with non small cell lung cancer (terminal), I have had 4 sessions of chemotherapy, luckily for me I had not one bout of illness at all ,,I have serious pins and needles in my feet,can't walk because of the pain sometimes,You explained the Scan very well and it has put my mind at ease,So thank you very much,My oncologist has told me my next step will be radiation treatment but can't tell me yet when that will be ,,,thank you Frankie ... View more

Hi Kate   Thanks for the reading material. Is this this your revenge for me sending all those empty virtual books to @Lehiatus  and @Lampwork54 ? You have to send me content! 🤓   Well done. Better effort than I. This should keep me away from Dr Google for a bit.   The chemo has been mostly tame since the first day. I've been feeling a bit over stimulated today. I think it may be the nausea drugs, only for two days after the oxaliplatin. I was told it was a stimulant and couldn't take it close to bed time.   🌨🌨🌨🌨🌨🌨🌨🌨🌨🌨🌨   We got snow in Canberra tonight. So cold on chemo-ridden fingers, but worth it. Nice treat.   Cheers   Phil ... View more

I don't have any comments about your treatment choices. That of course is up to you. But I do want to say that if you have some long standing issue of loss and ongoing sadness, then resolve the issue somehow so the sadness disappears. This may help your body move to spontaneous remission of the cancer. ... View more

Hi Frankie,   It's just the worst thing to tell your family.  Husbands are difficult too!  Mine seemed to shut down.  He just didn't seem to be able to talk to me.  Many times I had to ask him what he was thinking about and he would say his thoughts were all over the place.  Evenutally it settled and we were able to talk about the what ifs..  What if I died on the operating table? Always a possibility.  What would I want for my funeral and everything that goes along with it.     One day, just a few days out of hospital, I'd had a long, painful day and just wanted him home.  He was home for a little while then raced off.  I rang one of my daughters and told her he was driving me mad.  She called him.  He came home and told me that he had to get me the juicer from our son.  I had no fruit yet to put in the juicer.  It had not been urgent.  He explained.  It was the one thing he could do for me.  Men like to solve the problem with action and it's really hard for them to feel helpless about how to fix you or make you feel better with cancer.  That's not easy for anyone let alone the person who loves you the most on this earth.     It's also really hard for them to take in all the information.  I told my husband something in hospital which he said I definitely had not told him but I definitely had.  I think there was just too much information for him to process so he blocked out some of the parts he didn't want to know.  He's taking two days off at the end of this week because, believe it or not. mentally, he went through far more stress than I did.  I just let him believe that because it makes him feel better.  I am sure it is stressful watching someone you love go through something horrific.       I wish you every success for the future. ... View more

Hello I had the lobectomy in June.  They removed the right hand side, lower lobe. I had a 7 day stay in hospital, and continued on strong pain killers for about 2 weeks afterwards. I found I spent most days at home for the first few weeks living my in pj's and watching tv, or sleeping (side effect of the pain killers).   After a few weeks I started feeling normal again.  It felt like I had popcorn in my chest, it was the lung trying to expand, it was a weird sensation.   i start my chemo (for precaution) tomorrow. I am having 4 cycles of it. My lung cancer was stage 2, nodule in the lung, and an infected lymph node. Hopefully it will never return, but the fear is still there.   Hope everything goes well for you.               ... View more

Hi Frankie   I'm not experienced yet. My chemo is still to come. I am told I won't need such a strong treatment and may not lose my hair.   I'm not sure what to expect. I'm treating all the advice I get as a good guideline, weighing towards the positive. I'm not worried if I lose my hair. I was told it will grow back, but thinker and fluffier. I'll be happy if it grows back with less grey.   I think it's fine to avoid the wig. If you are confident to do it, then go for it.    All the best... ... View more

Morning @Frankie, how are you doing this morning?   Sorry to read of your experience. Maybe seek out your states health body/department and have a chat to someone there? I am very glad you were able to get everything sorted though    -Kate Online Community Manager     ... View more

surgery chemo radiation immunotherapy Id get strong chemo like the stuff that makes your hair fallout and scans but some hot stuff surgeon can get you out in less than a week HO ... View more

Hi Lorna,   i share your thoughths about not joining a cancer group and here I am joining just to answer you. You have inspired me to join and I hope this shows how you can continue to inspire people today and everyday regardless of your medical diagnosis.    My mother passed from Breast cancer just 3 years ago and I was diagnosed earlier this year. It broke my heart mainly because I finally see this journey with my own eyes and I don’t have her around to help me through it. I wish I could tell my mom that I never understood her pain and fear but now I do.   I have a young daughter, my family and friends are overseas and I too feel very alone.  Keeping myself busy has been helpful I’ve been writing, painting, and finding creative ways to stay hopeful.  I kept my diagnosis a secret from social media but told my closest friends and relatives. They understand how difficult the diagnosis was for me but they cheer me up and check up on me all the time and it feels good to feel love and compassion from others in a private way.   I feel for you. Enjoy every day even if it means staying in your pjs. That’s what I’m planning on doing all day today.    Big hug xo   ... View more

Hi Frankie,   I've been fortunate enough to not to have to do this. But I would like to offer my congratulations on passing the tests clear! Well done.   -s   ... View more