June 2019
2 Kudos
Hi Frankie, You will probably be very sore for a while yet - probably a good 4-6 weeks till you're feeling well enough. Be patient with your body & your mind. Eat as well as you can & keep as active as you can without overdoing things & you will start feeling a bit better. Be patient with your hubby too, as he's probably worried about you but doesn't know exactly how to help you, & he would be upset that he can't do anything to take your pain away. I certainly hope things improve for you soon. Take care 😊 Budgie
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I thought I was being wheeled to theatre to get put to sleep and the op done. Instead I was wheeled into a room next to the theatre. I remember two people working on me. Putting in canulas, drips, needles, alsorts, kinda of like the pre theatre part. Last thing I remember was a gas mask being put on and being told to count, next thing I was in recovery. The surgeon had said that he would ring hubby as soon as he had finished the operation. So since 3pm hubby, mam and dad are in the lobby of the hotel sitting and waiting. When it got to 5pm hubby was very worried and went up to the ward and checked, he also kept checking the hospital link on his phone, and that said i was still in theatre. He was thinking that somehting had gone wrong. He said about 6pm when he went to the ward with mam and dad I was just being brought back then. I was in theatre longer than expected, but the surgeon should of rang him like he said he would. Hubby was apparently just about in tears, but so relieved to see me. I remember a nurse trying to shove oxygen down me, and to move up the bed. I was in agony, i wanted her to go away and leave me alone. Another nurse showed me how to dispense the fentalyn myself, with a 5 minute lock out so I cant overdose, then the other nurse takes it off me. Even though I was semi conscious I wanted that dispenser back, and I got it. I remember Mam and Dad and Henry being there, then they were gone. I had pumps on the socks for the circulation in my legs. The blood pressure machine kept automatically taking me blood pressure and oxygen levels that night, nurses were checking me hourly, and I was dispensing the fentalyn for the pain. It hurt, even with the pain killers, i had a block in the back, which they gave me to avoid the agony, and i had other local injections so that the pain would be bearable after the op. Each check, the nurses needed me to cough, so they could check the drain, for air bubbles. The cough was so quiet, as it was so painful. To breathe hurt, but I knew it would get better.
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June 2019
1 Kudo
I was to have an early breakfast of toast and tea at 6am. The fast after that, however I could stilll have water or apple juice up to 9am. I was getting worried about my breakfast arriving on time, it came at 6.10an so I gulped it down, however, I dont think a few minutes would of made any difference. I had showered using the antiseptic wash last night, and I was to do it again this morning before the op. So i figured I would have a late shower and sit in bed and read magazines. Hubby was coming up about 10am. At 9am the Nurse came and took out the heparin drip. A blood test had showed that my bloods were on the right level. You are not going to believe what I did next, I looked at the clock, I had a hour before hubby was coming in. I put on my clothes, grabbed a cigarette and went out onto the road and smoked that cigarette like it was the last thing I would ever do. I knew this was wrong and I was riddled with guilt, I quit smoking in April, with the odd one here and there. After finishing it, i stuffed my mouth with mints, cleaned my teeth and ate more mints. I showered in the antiseptic, so that I would be ready when they brought in the gown/socks for theatre. Then hubby and my youngest daughter arrived and my son. My son stayed a while, then gave me a hug said he loved me and off he went. The nurse came with my gown, i changed into it, and she put on the socks, and the best part..the Pre Med. Having the pre med relaxed me, my daughter and hubby said i was talking nonsense. Saying I had two dogs at home, when I only had one, and lots of other jibberash. Once my daughter left, it was just me and hubby, this is when i became scared. What if something goes wrong, what if it has spread and he cant operate, what if i bleed to death. I remember talking to hubby about this. I was told the op will be about 3 hours. Next thing I new I was being wheeled to theatre, petrified.
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June 2019
Thank goodness I staying in HBF. i was going to cancel at $204 per fortnight and we didnt really use it. I arrived at The Mount and had my clinic appointment where the Nurse told me what was going to happen before and afterwards. She was very friendly and made up relaxed. She said the surgeon needs me to have another chest xray before the operation and handed me the form. She told me the imaging place is on the next level...i stopped and thought about this.... I am not admitted yet, therefore I am an out patient and HBF will not cover the xray. I asked if I can have the xray after I am admitted, and she said yes. Phew.... saved some money there. I then went to admissions for 10am, paid the $250 excess on HBF and was admitted. I was taken up to the ward, it was a bit scarey when I realised my bed was in ICU. My mind was soon put to rest. The bed i am in is the overflow bed for the Wandoo Ward, after my operation I will be moved. A bit inconvenient, as when I get a visitor they have to ask the Nurse to let them in, as the ICU doors are always closed. There was a family in the ICU lounges, obviosly visitors of a patient, they were very weepy, it was very sad to see. The nurse came and weighed me again, and put my bands on and went through the standard questions with me. I did not think it right for me to get into my jammies, so left my clothes on. I wasnt sick. The nurses kept asking if I needed anything, but each time i let them know, after the op I will need them, before I am fine, and they are busy, I can find things for myself. I was taken across to xray, the this only took a few minutes, then back on the ward. The surgeon came to see me, as did the gas man, I changed into my jammies, and the heparin infusing drip was inserted. It would stay in my arm until 9am the next morning. That night in hospital I needed some sleeping tablets, I was very anxious. My husband came back up that night, as did my daughters and son, my other son was on the rig working, and cannot visit until next week. I had no appatite for dinner when it arrived, but later on my husband went and got me some KFC, (a walk into the city, up to William St, thent he 950 bus back to the hospital). It was late when he left, I could tell he was sad, but didnt want to show it. Everyone, including me, was sad, but didnt want to show it. I cried each time they all left, did they cry when they left too? Parking was available around the hospital, and a City of Perth Car Park accross the road. Access to and from the Freeways was also close. My operation was to be at 12 noon tomorrow, a heart patient was to be first off the rank. I fell asleep that night staring out the window on the lights of the BHP and Rio Tinto Buildings in the city. Watching the lights on different floors turn off and on, wondering who was in there so late. Beats counting sheep,!!
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- Tags:
- Bronchoscopy
- cancer
- dad
- hospital
- kfc
- lobectomy
- Lung
- lymph nodes
- malignant
- mam
- nodules
- nurses
- Sister
- surgeon
- the mount
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June 2019
1 Kudo
I received an appointment letter to see the Lung Surgeon on the 8th of May, Finally!! This appointment was then rescheduled to the 22nd May, I hate waiting. This appointment was then rescheduled to the 29th May. There are only 3 surgeons in WA that do this operation. My surgeon has not done one for a while as usually when the Lung Cancer is discovered, it has spread, and the operation cannot be performed. He looked at the dates that the Cancer was found, and commented that I should of seen him straight away!! If the cancer has spread, he cannot operate and will just sew me back up. He told me 1 out of 10 people can be operated on, and I am very lucky for it to of been accidently found. He said my results from the respirotory clinic were good, I was 53 and otherwise healthy, so he will operate, and remove the lobe of the lung with the cancer, and the infected lymph node. He will also put the camera back down to see if anything has spread. He will open me up under my right arm and cut to the back, he will the open my ribs and work on the lung. He was very positive. I then had to see the Nurse to book me in for the operation. She said I cannot have it done at FSH until 24th July!!! Your kidding right!!! I then told her I have HBF, she saw the doctor, and he said he can operate on me on 7th June at The Mount. All booked in, i must go to the hospital on the 6th, so they can give me a heparin infusing. I will come off the warfarin, and he can control the blood through the drip. Very anxious now, I am going in hospital in a week and a half, he is taking some of my lung. Because of the time, what if it has spread, and he cant operate. what if something goes wrong, and I dont wake up after the op. I was scared before, but now I am petrified. I let everyone know the date, I am positive, I will fight this, and I will win. My husband looks really stressed, I have never seen him like this before. We need to talk. I try talking about 'if somethig happens.....' but he just says nothing will happen. I like to be prepared just in case.
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June 2019
While waiting for the appointment letter for the lung surgeon, I receive an appointment letter for the Breast Clinic at Fiona Stanley Hospital. How did I get an appointment there? I went, this is great, now my lung and breasts will be done at the same place, that is if anything is on the breast. SKG seem to think so. They said I need a biopsy on both breasts. I attended the clinic, I explain to them that I already had the ultrasound and mamogram a few weeks ago, I have a copy of the letter from SKG. They request the images from SKG to be emailed. What should of took 10 mins took them about 1 and 1/2 hours. The doctor decided she wanted to to an ultra sound on me, and did. Doctor said there is nothing there at all. Also, the PET scan I had for the Lung Cancer would of showed up radio active blobs in my breasts. Thanks you SKG for all the worry, and thank you Fiona Stanley Hospital for telling me my breasts are fine. I went to work the next day smiling and telling people i have healthy breasts!!! Some thought I was going crazy, but those that knew, were happy for me. I only have the lung worry about. Rang the family and told them. We are all so relieved.
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June 2019
1 Kudo
The last week was terrible. I didnt want to get out of bed at all. Some days I stayed in my pj's all day. Most days I cried. Some days I managed to get myself into work, some days I worked from home. My alarm went off at 4.30am. I had to be on the 5.50 train to Murdoch, then I would get a connecting bus to the hospital. I was given a gown, and a bed, and the nurse went through the procedure with me. The gas man came to visit me again, and he told me how luck I was, as usually by the time lung cancer is discovered it has spread. Very rarely can it be removed. It was about noon when they wheeled me to theatre. I had to drink some horrible liquid and cough at the same time. Apparently that will numb the throat. Next think I know I was waking up in the day ward. A nurse asked if I was from Mongolia. I am from England, how could that be mixed up! I had to eat before I could leave the hospital, the nurse kept telling me to eat. They brought me ham and cheese sandwiches, i dont eat cheese. I ate the bread, drank the tea, got dressed, and was discharged. In the car I read the notes, malignant nodule, lymph gland infected, other nodules appear but not malignant. Well i have lung cancer all I need is for the doctor to formally tell me. I have been talking about it since the beginning, so I wont get all teary. I dont think I have anymore tears in me. I tell my husband not to come, but he insists. I have to wait for the appointment to arrive in the mail. I have cancer, now I need to know what they will do and when.
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June 2019
I went to see the GP 5th April and he had my results from SKG Imaging, they were not good. He tells me I need a biopsy on both breasts. He tells me that I should have it done at SKG St John of God, where I had the ultra sound and the mamogram. Great, I wont be an inpatient, so my HBF wont cover the cost. I will need to claim of Medicare and pay the difference. Do I get my breasts sorted first or do I get my lung sorted? If i go for the breast biopsy and it is mallignant and I need an operation, then wont this delay the treatment of the lung. Maybe non of the cancer is malignant. Maybe I am dreaming, and this isnt real, I am not sick, but I have cancer in my breasts and lungs. I decided to get my lung seen to first. I cannot focus, I can for a while then I get weepy as the thought of Cancer comes into my head. Spent most of the weekend in Bed crying, feeling sorry for myself. I hate waiting, I keep watching the letter box.
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June 2019
While waiting for the hospital to give me an appointment with the Lung Clinic, I asked my GP for a referral for a mamagram and ultra sound on my breasts. I have no lumps, I have no discharge, no symptoms of breast cancer, but the Xray and the CT Scan showed something in both breasts. After ringing around for an appointment it was going to take 3 weeks before I could be seen. I cant wait 3 weeks, what if the mass grows. I am in HBF so I decided to make an appointment with SKG at St John of God in Murdoch, they could get me in the next day. However, as I was not an inpatient, HBF will not cover the cost. I sent the bill to Medicare, and it worked out the gap I needed to pay was about $190. Thoughts of the mamagram still brings tears to my eyes! My poor breasts were squashed and poked and squashed again. I was so pleased when this was over. Then they did the ultra sound, that hurt too, but not as much. I was just about to get changed and leave, when I was told I needed to go back in for another mamogram!! Then another ultra sound!! This time the doctor came and did the ultra sound, they must of found something. I went home miserable, lung cancer and breast cancer, (and I dont have any lumps, discharge etc) No letter from the Lung Clinic yet. I carry on as normal, the body knows what to do, the mind is somewhere else. I feel numb. At this stage only my girls and my husband know about this. Work has also been told, as I will be requiring leave to attend appointments, If I have breast cancer, I will have both removed, and then concerntrate on the lung cancer. What if it has spread and its all over, what if I am going to die? I always though this happens to 'other people', it appears I am now the 'other people'
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June 2019
1 Kudo
In the past I have had no major health issues, apart from having a TIA (mini stroke) 2 years ago, at the age of 51, which I recovered from. Tests showed I had antiphospholipid syndrome, (my blood forms little clusters) and therefore need to stay on Warfarin for the rest of my life. I took Thursday 28th of March off work as I had felt I was coming down with a cold. On the Friday morning I figured I would take this day off sick also and rest up. I decided to go and see my GP and get a Medical Certificate for work. I wouldnt normally do this, but for some reason I did. My GP gave me a medical certificate, but he wanted to connect me to the ECG Machine to make sure everything esle was okay. He doesnt usually do this. However, he did not realise that the printer on the machine was malfunctioning. It gave an irregular reading, and he sent me to hospital for a second opinion. My GP had faxed the hospital, so they were expecting me. He had also told them that I had previously had a mini stroke, and he was worried the irregular reading from the ECG may be something more sinister and for them to check. The local hospital checked my heart, it was fine (by now my GP had been told the printer was faulty), they also checked my INR level for my warfarin dose, that was fine. They also decided that they would do a chest xray, and keep me in hospital over night for observation. They came to my bed that night and told me I have a mass on both breasts and a mass on the right lung. I was virtually told I may have breast cancer and lung cancer. The next morning I was still in shock, the doctor took the canula out of my arm, and said I can go home. But I will need to make appointment for a CT scan of my chest. Just as I was about to leave the hospital, the doctor returned, and told me he had liaised with the City Hospital, and they advised I need to have the CT Scan before they discharge me, as it could take weeks to get an appointment as an out patient. Doctor then had to put in another canula as fluid would be injected into me. He said it is unusual for the City Hospital to ring and say they must do it now. After the CT Scan the doctor told me I have a nodule on my right lung which is about 3cm and also a lymph node in my lung which looks irregular, and the masses on be breasts which will need to be looked at with an ultra sound and a mammogram at a later date. My case was referred to the Fast Track Lung Clinic at the major hospital. My world was turned upside down. I didnt know if it was benign or mallignant, all I knew was I had cancer.
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