About Lindsay

Lindsay

Hi Lindsey, I’m Lindsay too. Sorry to read about your recurring diagnosis. Like you I thought I was at the management stage. Unfortunately like you again, my tumour has spread. Im not sure if you live in a major city or regionally, but also like you, I have a oncologist appointment. Mine is this coming Thursday. For that appointment I needed 2 PET scans. Those scans weren’t able to be done at the public hospital. My oncologists PA organised to have them done at the private hospital. The reason I’m telling you this Lindsey is just to reassure you, even with COVID & those distractions, things still get done. I had my scans completed yesterday & my GP was on the phone earlier today. Have you spoken to your referring doctor about the CT appointment. Chances are, that can be done privately, PRP? Or another imaging place nearby. Maybe a call to your doctors assistant is worth a shot. The way I see it Lindsey, if you keep calm, don’t stress over things you can’t control & stay as upbeat as you can, everything will fall into place. I’m only new to this group too. I find myself up and about at the strangest times. I often read comments posted during the day, and feel uplifted. Try to keep positive, Coronavirus is just another challenge for us all..... Keep in touch we’re interested in you getting great outcomes & better news than bad. cheers".........Lindsay

Lindsay

Your absolutely welcome, Slock7. We’re here to help one another. Please keep in touch, I for one will keep an eye out. Lindsay

Lindsay

Hi Slock7, First of all, I have absolutely no medical training. I wouldn’t normally comment on issues, like this, where I have no knowledge. I read your post & was concerned for you. I looked at a number of sites on the net. I checked out side affects & normalities, of that procedure. It appears, from reading these articles that blood in the stool is a recognised side effect. It also makes a point of keeping a eye out for blood clots in your legs. I hope you are able to see your doctors soon, and have that verified. In the short term, it is a recognised occurrence & you shouldn’t feel it’s peculiar to your condition / procedure. Once again I AM NOT a medical person, just another patient. I’m pleased you asked us the question & hope as this day moves on, someone with knowledge might join in. Take care, best wishes in your treatment. Don’t worry too much. Lindsay

Lindsay

Weird times indeed, Phil. Thanks for a little levity on such a serious issue. We all need to smile, when we can, and your post definitely made me smile. Thanks for that. I hope your phone hookup has good news coming your way. Take care, Phil....by the way, I’ll take the Grange and you can have the more valuable toilet paper, OK. Cheers............Lindsay 🍷

Lindsay

I’m sitting in a waiting room. It resembles a cupboard, but it’s private. Cannula in, first cup of contrast downed, now tapping the keyboard. I’ve had this PET scan quite a few times in the past. I will confess though I am a little nervous this time. I already know that the tumour in my pancreas has grown. Confirmed a week or more ago. Why do I feel apprehensive? I have absolutely no idea. I reckon for the 1st time, I feel a little out of control. I can’t just get up & walk out. The thing is, I don’t want to disappoint anyone. My oncologist and his team have worked very hard for me. My sister in law, who is in contact most days, from Melbourne is worried.. Even my work mates, who I haven’t seen since 2017, call to check on me. I feel a responsibility to all of these people, to make it all work. injction done, cannula out, door closed. Waiting on my next cup of contrast. Nothing special, but nerve wracking none the less. I suppose I’m providing you with a little too much information. Being scared and feeling alone is all part of the treatment. This is a good feeling for me. It provides insight into the uneasy feelings of people I don’t know. In turn it makes me more empathetic to the those people. Lindsay

Lindsay

Hi Sch, Likewise, great to see you again. Thank you for sharing your experience with me. I for one admire your defiant courage. To get yourself up & reinvented after more than one life changing experiences is commendable. It is further proof, we aren’t all born equal. I read and reread your post. It’s a great post, I hope lots of people read it & take your courage from it, for themselves. Young people who have cancer in their lives, should take comfort in the knowledge that it isn’t the end. I saw a post from a 27 year old woman who felt like there was nowhere to turn, she felt alone. I hope she reads your message to me, and understands there is hope and it’s not all gloom and doom. In most of my everyday life, I just take each day as it comes. I wouldn’t consider myself a merchant of despair, or a woe is me type, but sometimes I do think how different my life would be now, if I hadn’t been told I had a rare cancer in 2016. Not blaming the messenger or myself. No blame placed anywhere, just a back of brain thought from time to time, in the quiet of a 1am sitting room. sch, just a self indulgent message to you personally. I hope you get to compete & complete your ultra. I hope the time you achieve is up to your expectations and most of all, I hope that euphoric feeling washes over your body, when it’s finally over. Thanks for your message, reply and inspiration. No doubt we will catch up again soon. P.S. avoid Barefoot running shoes, fast but crippling. Just a thought. Lindsay

Lindsay

Yep, I’m right there with you, Budgie. The daily banter about everyday things, with your work mates........ How I miss that. lindsay

Lindsay

Does anyone resent their cancer? It’s a funny question. Nobody enjoys being diagnosed with cancer, I’m pretty confident in that. No one likes the treatments, I’m sure of that too. The inconvenience it places on your life is where I’m coming from. I just had a great conversation over the phone. Not the normal reminder calls from Nuclear medicine. Follow up calls from doctors receptionists, or my wonderful at home nurse, are you ok for your injection this Friday. No it was a call from a real person. A conversation about me, my health, my dearly departed wife and her parents. I spoke out loud to someone about my love of running and how cancer has robed me of that. It’s the first time since 2017 I had a chance to talk about that. Since my diagnosis in 2016, I lost contact with my running friends, the disruption to life, changes everything. Yep, I feel pretty resentful about my cancer. I love my caring practitioners, people who want me well, but I do wish I didn’t see my GP September 2016, who sent me for those tests. IGNORANCE IS BLISS.

Lindsay · Re: Hospitals & COVID2019 by Lindsay in Cancer and COVID-19 March 2020 1 Kudo

Thank you Kate, to both.

Lindsay · Hospitals & COVID2019 by Lindsay in Cancer and COVID-19 March 2020 2 Kudos

I had news a week os so ago, the NETs tumour in my pancreas has grown. It seems the MET in my liver is stable. The oncology team has booked me in for Dotatate & FDG PET scans this Wednesday & Thursday, 25th & 26th March. All good, no big deal there. I live 90 minutes North of Sydney, where the scans are being done. Usually I would catch the very busy commuter train up & back. This time due to COVID, I’ll drive. My scans were originally booked for RNS public, as usual, but were subsequently moved to RNS Private. Less foot traffic, fewer people & I guess less chance of infection, I don’t really know. The Point: there isn’t any information, from what I have seen, on what people with chronic disease and low immune systems do to navigate transport, hospitals, medical clinics or even supermarkets safely. I personally don’t have any of those concerns but, I did hear a woman tell another in ALDI yesterday, she was cancelling a doctors appointment, due to the Coronavirus. By & large, the government is doing the best it can, in these strange & difficult times. I do think a little more information should be made available to agencies and media for better distribution to the public. Knowledge is power, or something like that!!!!???? Lindsay

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Resent your cancer?

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Hospitals & COVID2019

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