Hi Paulac,
I'm sorry to hear of your partner's diagnosis. This is a hugely stressful time for your family.
I too am a person who needs to consider/prepare for the worst, it is definitely a coping mechanism. Visit the 'idea' of worst case scenario and then try not to let it be what you focus on. I KNOW it is HARD and it will never totally escape your mind........the thing is, you are going to need to reserve as much energy (mental, emotional as well as physical) as you can, to get through each day, particulary for your son, as well as for your partner and of course yourself. Dealing with what is happening on a daily basis will be draining enough without using energy on the 'what if'.
One of the hardest aspects I have found when a loved one has cancer, it may be in their body, but it is also in the 'lives' of everyone they love. We yearn for control, but there is no control when it comes to cancer. It sucks.
Use this website to offload, friends and family are well-meaning and try their best to be supportive and accept all the help they offer.....a huge thing......the reality is, unless they have been through it themselves it is impossible for them to understand how this has affected your WHOLE WORLD. People on this site are living what you are living, the circumstances may be a little different but the emotions are very similar. Fear, anxiety, fatigue, anger, frustration.... the list goes on.
The 'positive thinking' line that you are going to hear over and over and over.........we all know how 'unhelpful' that is. If you have a friend/family member that you can talk to 'warts and all' then by all means do that AND write hear as often as you need to, your thoughts/fears/questions etc etc, just getting them out of your head can be a relief AND the bonus is that for those times when sleep is eluding you and yet it is 'not appropriate' to phone someone in the middle of the night...this site is here 24/7.
Remember that you can call the Cancer helpline anytime also and use what ever resources are available to you, if you're not sure what they might be, talk to the nurses at the hospital, find out if there is a social worker available. You may be eligible for a payment from Centrelink, Carers allowance and/or carer's payment, your partner may be eligible for a disability pension. Investigate this, it is daunting I know, by contacting Centrelink to advise them it may be a possiblity, they record the date of notification and then may be able to start payments from that date.
I've said enough, I'm sorry if it has been overwhelming, I found most things were once my husband was diagnosed.
I wish you and your family strength as you face this challenge together.
Kind regards,
Mrs Elton
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