Hi Judith, I was diagnosed with terminal stage 4 lung cancer last year. I, too, was overwhelmed. Weirdly, the cancer had metastasized from uterine cancer I had fifteen years ago. So I haven't been treated with the drugs you mention - rather as endometrial cancer not lung cancer. So I have an immunotherapy infusion of Pembolizumab every month and take 4 mg Lenvatinib orally. Eighteen months down the track I am doing well and able to go out and about fairly normally. Some cancer fatigue but that's all really. I have no knowledge of the chemotherapy drugs you mention but can say that immunotherapy is pretty amazing - well at least in my case. All the very best as you work through all this. I know the shock you must be feeling. Linda  ... View more

What a great song! Thank you! ... View more

Dear Andrew60, my sincere condolences re the death of your  mother.  And all good thoughts as to how you cared for her at the end of life.  Your post resonates with me as I, too, was diagnosed last year with terminal, stage 4 lung cancer and have never smoked. And I am also in my 80s. At the moment I am being treated with immunotherapy and my condition is stable.  But there is some reassurance to know that your Mum was treated with care and love at the end of of her life. That is all any of us can hope for! ... View more

Hi, I'm on a similar journey. Stage 4 terminal cancer in the lungs which has evidently metastasised from endometrial cancer I had 15years ago. Seems there was an escapee cancer cell floating around all that time.  Like you. I'm having Pembrolizumab infusion every three weeks. Was on 20 mg of Lenvima for three months and felt just awful. Now on 10mg which is easier but managing the the side effects is still hard work. Sending my best thoughts! ... View more

Hi Beachdiver, I have been having immunotherapy infusions for several months now. .. along with lenvatinib taken orally each day. While I haven't experienced the severe symptoms you describe, I have found the going hard. I guess it's different for everyone. I'm grateful that the treatment has kept me alive but managing the ongoing side effects - lethargy, nausea, stomach cramps etc etc - as best I can is hard work! Wishing you all the very best and hoping those dire symptoms recede.    ... View more

I have a regular PET scan after four sessions of immunotherapy - I have the therapy every three weeks. I always wait until my regular appointment with the oncologist to hear/see the results of the PET scan and take a family member with me for support. That way I can ask questions and so can whoever is with me. They can then write up the results of the discussion so that other family members have some clarity about what is happening.  I was alone when I first got the diagnosis that I had stage 4 lung cancer - and that was such a shock to hear  as it seemed to come out of nowhere. So if you feel you can wait for your appointment to learn your results, and ask questions about what they mean and possible treatment it might come a little easier - though it is always stressful. But wishing you all the very best for your results - whatever you decide to do.         ... View more

Hi Dacey, I have been treated with Keytruda for eight months now - along with an oral dose of Lenvima (lenvatinib). I have stage four endometrial cancer which has lodged in my lungs much to everyone's puzzlement. ( I had uterine cancer 15 years ago.) The treatment has resulted in some shrinkage in my tumours. At first I had quite severe side effects - high blood pressure, nausea, extreme fatigue, joint pain and more. After three months, the LenVima dose was reduced and the side effects have to some extent too. Still get fatigue attacks and have gastrointestinal issues. I have to eat small meals I and try to conserve my energy for the more important things. I hope you are now going along OK with your treatment. ... View more