July
I’m honestly gonna stop whinging so much cause my palliative pain management team have been friggen awesome and even gone to out of the box thinking (as they said “It works for you”) it really makes me mad palliative patients can seriously be questioned on pain 🤬🤬 …..how dare they Rob quality of life! Sorry and angry to see this
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July
Oh mate what a road we bloody travel hey, 8 years I’ve fought this friggen demon and 8 years my hubby has always said “we got this” now he says very little. Some days I find it hard to believe it came to this, others I know I knew, when it came back the first time I knew…let’s win the lotto hey and live your dream being nomads
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July
I’m so sorry Marie…the one saving grace in all I’ve gone through is a pain management team that has been incredible they truely changed the quality of my life, I don’t understand they can allow someone to go through this
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July
2 Kudos
So I’m eating my cereal this morning, a huge step as I was on ensure for awhile and thought id be stuck with it and this weird thought pops in my head……I’m going to be scared not being with my husband, he’s always been there, saved me from a DV relationship, offered me a home and his heart for over 20 years it’s been us as a team….I’m worried leaving him, breaks my heart he will raise our grandchildren on memories of me, him sitting home alone at night, working out the remotes lol…….but it hit me I’m also going to be without him and I don’t know how I handle that without another dose of dizapam 😢 I smell his clothes while he’s at work trying to absorb him….I’m scared what awaits me and I’m scared he won’t be there with that reassuring hand squeeze…..I gotta get my tears out now he’ll be home soon and when I’m happy he’s happy so I gotta have my happy face……sorry bout my ramble….don’t know why this hit me today 😢
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July
Are you also currently having BC chemo, no one told me to stop taking leterzole and the affects were horrendous it wasn’t until I asked for a script they said “you’re not still on this” and I nodded meekly and they were STOP ……it has terrible side affects with or without chemo but with chemo I couldn’t move
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April 2024
1 Kudo
I’ve had 3 hipecs and two emergency surgeries days after, I’ve been opened to many times and the scaring is to bad. After my last op I was left with a 9cm deep hole that was 2-3cm wide …..took a long time and a very dedicated home care nurse with out of the box thinking to help close it
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April 2024
1 Kudo
Sadly it is a journey though, and the fam gets to come for free…..it’s so freaking insidious
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April 2024
2 Kudos
So after 8 years of aggressive high grade Pseudomyxoma peritonei (PMP), chemo, 7 surgeries (I can remember) loss of multiple organs, the one that’s gonna get me is benign and I’m no longer operable….as it slowly closes my stomach I hear it gurgle away like it’s taunting me….I really wished I hadn’t asked and walked out thinking it was aggressive like they’ve all been….benign…who’d have thought…oh the irony, I so wished I hadn’t asked cause it makes no sense, this damn disease makes no sense
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- Tags:
- end of life
April 2024
1 Kudo
So after 8 years of aggressive high grade Pseudomyxoma peritonei (PMP), chemo, 7 surgeries (I can remember) loss of multiple organs, the one that’s gonna get me is benign and I’m no longer operable….as it slowly closes my stomach I hear it gurgle away like it’s taunting me….I really wished I hadn’t asked and walked out thinking it was aggressive like they’ve all been….benign…who’d have thought…oh the irony, I so wished I hadn’t asked cause it makes no sense, this damn disease makes no sense
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