I like what you had to say,Sailor. ... View more

When I told my family about my cancer 2 months after diagnosis ,some contacted only by e-mail,my mum told me one of my brothers-in-law got a scare and went to get a possible skin cancer checked out. I never heard the outcome nor did he or my sister ever ask me how I was or even have a proper conversation .They did at least attend my 60th birthday party and give me a nice present.I think that I do hold a tiny bit of resentment about things like that. I have my next mri in about 3 weeks and have secretly decided not to tell anyone that I'm even having it unless they ask how I'm going .It's 10 months since my treatment finished.To me it will be a kind of test to see who cares . I have mentioned some of this before .I have 9 sisters and 2 brothers . Some have been very caring and supportive ,others a bit less and some not at all interested. I do not dwell on these thoughts but they pop into my head every now and again.I realise they have lives and families and problems of their own and they work and I stopped over a year ago so have too much time too think even though managing to keep busy. It has occurred to me that at the time just before my surgery my husband told some of the family that we would keep them up -to-date via e-mail so that we didn't get too many phone calls . Some calls with my sisters were very long and often.That is not the case so much now . I spend time in Facebook since late last year,this site and 3 other sites where other people have cancer.Then I play computer games. Sometimes I stay up really late and so my husband,who is my best friend, goes to bed probably feeling lonely. I know this is selfish of me but I have become a bit selfish since CANCER entered my life. I think I resent CANCER because it changed my life, my looks and me. Wow,I hadn't meant to say all this but I'll leave it there and play my mind-numbing computer games. I wouldn't say most of this in my off-line life . ... View more

A new thought- lots of hugs or similar to make her feel even more secure and loved.That's what I needed between diagnosis and surgery .Every now and then I'd feel a strange nervousness and/or fear and a sudden and overwhelming need for my husband to hold me. And I am 60 so I imagine a girl would need this more. Hope this helps. ... View more

A new thought- lots of hugs or similar to make her feel even more secure and loved.That's what I needed between diagnosis and surgery .Every now and then I'd feel a strange nervousness and/or fear and a sudden and overwhelming need for my husband to hold me. And I am 60 so I imagine a girl would need this more. Hope this helps. ... View more

A new thought- lots of hugs or similar to make her feel even more secure and loved.That's what I needed between diagnosis and surgery .Every now and then I'd feel a strange nervousness and/or fear and a sudden and overwhelming need for my husband to hold me. And I am 60 so I imagine a girl would need this more. Hope this helps. ... View more

Glad to help with ideas .How does the poor girl cope emotionally? I can't really imagine . How are her parents and siblings ? ... View more

It must be so hard for everyone.Is she having her best friends around? Is she interested in their gossip.music,what's going on with them ? Some more ideas: TV SHOWS PLACES OF INTEREST THEME PARKS OLD SCHOOL REPORTS FUNNY MOVIES ALL PHOTOS WITH HER IN THEM FAVOURITE RELATIVES VISITS I don't know if this helps It is all I can think of at the moment.Maybe you are doing some of these,maybe these ideas will lead someone to other ideas. SO HARD when she is so young , a child ,but a child who was becoming an adolescent,ready to move into a new phase in her life.My thoughts are with you all. ... View more

Hi, You have been given some good suggestions ,some of which will help even if not straight away. As for your mother's smoking -she probably sees it as something she does to cope with stress,even though it's not helping . To many smokers a cigarette is their only friend when things are going badly. The cigarette doesn't argue with you ,tell you what to do ,say things you don't want to hear.It's there when you want it. If you have never been a smoker this sounds silly ,but many smokers or former ones could relate to it. She ought to stop and she knows that but she is probably going through too many emotions to be able to take control of that whilst the cancer has thrown all into chaos. I hope things will improve when the doctors get to do something for your mum.The waiting for positive action is extremely hard .I hope she takes their advice . I also think you can get advice for yourself if you ring the Cancer Council. Even a phone chat on their helpline will make you feel better. They are truly wonderful. ... View more

Things are all ok here. Sorry I can't help you with info. Another site to try is Inspire .Make sure it's community health as there are business sites with a similar name.Please don't think I'm saying it's better. I'm just trying to give you an added help. Let me know how you find it ,if you try it. There is also the Rare Cancer Alliance as well.This may also apply to you .I do not know for sure. ... View more