March 2012
hi all,
i haven't been on for a while. i am undergoing radiotherapy and chemotherapy at the moment. this is the first time i have have radiation, and we are now 18 months and 23 days since diagnosed. there are some small tumours that have grown from cancer cells brought to the skin surface from keyhole surgery. these small tumours are trying to grow out through the skin and hopefully the radiation will stop them from growing outwards. they tell me it gets very messy if they break through and grow raw with bleeding pain and infection risk increased. the kids have agreed to some councelling and canteen is also a big help, being able to meet others in the same situation. it is still very hard and we are still taking things 1 day at a time. considering i was only given 12 months tops, i really appreciate each and every extra day. you stop taking stuff for granted.
thanks for your support, and good luck mirkir
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March 2012
hi all,
i haven't been on for a while. i am undergoing radiotherapy and chemotherapy at the moment. this is the first time i have have radiation, and we are now 18 months and 23 days since diagnosed. there are some small tumours that have grown from cancer cells brought to the skin surface from keyhole surgery. these small tumours are trying to grow out through the skin and hopefully the radiation will stop them from growing outwards. they tell me it gets very messy if they break through and grow raw with bleeding pain and infection risk increased. the kids have agreed to some councelling and canteen is also a big help, being able to meet others in the same situation. it is still very hard and we are still taking things 1 day at a time. considering i was only given 12 months tops, i really appreciate each and every extra day. you stop taking stuff for granted.
thanks for your support, and good luck mirkir
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September 2011
You can be so open on here, say it how it is, anytime day or night,
My standard response to others is 'I'm doing well.' On here I can expand on that. Sometimes I am doing well and sometimes not. I can say that on here. We can express our innermost hopes and fears, without feeling judged.
Sometimes i read others comments and really 'get it'. Its like I wrote their blog myself.
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September 2011
Sorry to hear your news. Hang in there, get as all the info you can, and just try to take it a day at a time.
Sometimes it takes a little while to really sink in, and get your head around things.
Take care
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September 2011
Sorry to hear your news. Hang in there, get as all the info you can, and just try to take it a day at a time.
Sometimes it takes a little while to really sink in, and get your head around things.
Take care
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August 2011
Hi and welcome,
Feel free to express any thoughts and feelings on here. Everyone is on here to have an outlet and also very supportive.
All the best wishes
Take care
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July 2011
Thanks Sailor and Andrew
A family friend has taken my daughter for a week. She is going to try and get through to my daughter and give her a wake up call, and try and get her to open up. It will also give both of us some space from each other. Hopefully something good will come from this and even if 1 thing changes it will be worth it. We need to be making the most of the time we have together.
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July 2011
I have 2 kids. A sixteen year old daughter and thirteen year old son. I know it is so hard on both of them watching me go through this battle and knowing that it may not have a good outcome. If I could take away their pain I would.
My son has his days but mostly takes it in, asks questions and gives me hugs. My daughter is just not coping. I know being a teenager is hard enough without this extra stress, but some days I a just don't know what to do with her. I am trying to support her and remain strong and positive. She is so negative about everything, angry, withdrawn, not sleeping,the smallest thing turns into the biggest drama, yelling at everyone in the family, and she really says some mean things. She won't help out around the house, won't open up to how she is feeling or talk about anything.
I know this is hard on her, but she is making it harder for everyone else around her. Its hard enough for me to be positive and continue to do everything when so tired and overwhelmed, without her challenging me on everything. She is taking advantage of me and really pushing the boundaries. She doesn't seem to notice that everyone else is having a hard time too.
Both the kids started going to the 'Canteen' Group which I think was really helping but now she refuses to go. She was seeing a counsellor but now refuses to go. She won't study and has just failed her Year 11 mid term exams.She is really bright but is just throwing it all away.she won't hand in assignments and has also been missing classes. I kept making allowances for her due to the situation but now I'm not sure if she is taking advantage and using my illness as an excuse. I just can't seem to get through to her.
I don't know what else to do to get her through this. I have been so supportive but now I don't know if need to get tough on her. Am I making excuses and letting her get away with everything?
She doesn't seem to notice that everyone else is having a hard time too. It is all about her.
I was at the hospital at casulty with my elderly mother who was having breathing problems and my daughter rings me to ask when I am coming home to cook her dinner because she is hungry. Aaargh.
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