August 2011
Hi Allicat,
You have done the best thing by writing these feelings down. This will help you move on and find a better place. I have had similar feelings and moments with close friends and family. Cancer can be so lonely sometimes, even when you are in a crowded room. I don't like when family talk about me to each other, not too me as a person. I think it's just a strain on all relationships.
If you ever feel like a 'whinge' please write to me.
Take care
Katie
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August 2011
Great News!!
I got a job! It's 15hrs a week so it is the perfect start for me.
Thank you so much to everyone for the helpful links and support. I'm so happy to be rejoining the real world.
Love to live
Katie
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July 2011
Thank you for your wishes BJS.
Silly, the trial went for 30mins, unpaid. I would be happy to work a whole shift unpaid to not only show my skills to future employers but to see if I can do the work and if I like the workplace.
Yesterday it was such a fast environment I knew after the 30mins it would not be the job for me. I still have a lot seizure activity when under stress.
I'm not sure if it's illegal to not pay for a job trial. I guess if it's the job you want it's a great way to get your foot in the door.
Cheers Katie
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July 2011
Today I had a job trial, as a Barista. This was my 6th job interview I've had since needing to return to work. The first 5 didn't end that well after I had to explain what I have been doing for the last year. So far telling potential employees that 'I have had health issues but am fine now' doesn't seem to be the correct way to get paid employment.
6th interview I decided not to say anything and it worked, sort of. I used to be so quick with my thought processes. Things would be natural and I could have a million thoughts running through my mind working on the next thing. Now my mind seems so slow and the task of deciding which cup to put under the machine was a problem. Maybe being a Barista isn't the job for me. Not a super busy cafe anyway.
Sometimes I wish money didn't run out once it was earned. My husband and I had a nice nest egg and we were working hard to accumulate and save to buy our first piece of property. With me not working for the year and my hubby's job commission based that egg is nearly gone. I'm thinking of talking with centre link to see if they can help me find a job suitable where I don't need to lie about my current circumstances.
I will find work in the next fortnight. That is my goal and I need you all to hold me accountable to it.
Cheers Katie
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July 2011
Dear Bernie,
You sound like a very brave person. You need to focus on your health now and try and let go of some of that control. Try and look from the outside in and let people know YOU need support now.
Let this site take some of the burden away.
Katie xox
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July 2011
Hi CatBye,
I was in your shoes 12months ago when I was 27. My tumour was removed about 95%. It was also in the speach section. 3 days after surgery when results came that the part of my brain surrounding the tumour was malignant but slow growing. I packed up to leave hospital 3 days after surgery. Too soon it turns out because later that night I tried to talk and only gibberish came out. After not being able to make any sense my Dad took me back to hospital and they explained that is completely normal. They called it dysphasia. (wish they told me that so I didn't freak out when I got home)
I still have these types of lapses 1 year on. It was 10 times a day at the start and now it would be max once a week. You are so amazing to be on this site so early. You are amazing. I couldn't work a computer for 1 minute without getting a splitting headache 2 months after it all happened.
Good luck to you. Take care of that head of yours.
Katie
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July 2011
Thank you all so much.
I didn't expect a reply so soon. Today was the best day I can remember. Taking the first step and allowing myself to vent about cancer and reading what is going on with all you beautiful people has opened my eyes. We are all here supporting each other when we need it. My family are great but they wrap me up in cotton these days. Treat me differently than I would like. I feel like I can't express myself.
Thanks again for taking the time.
Katie
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July 2011
Hi everyone,
I'm new to this site even though I was told about it a year ago. Wish I came earlier.
I had a first time seizure out of nowhere in July 2010 and 6 days later I was having a brain tumour removed. Grade 2 Malignant (Slow growing). So slow in the last 12 months it has not grown a millimeter. My Doctor suggested we "wait and see before we start Chemo" for the first month. Then I went 2 months later for another MRI. Then 3 months then 6 months. Up until 2 weeks ago and my cancer is still sleeping beauty. I have my seizures under control now and I'm looking at starting full time work again.
Each time I get so worked up before the appointment. I just feel like "this is it, I won't be lucky anymore". The doctor tells me good news and I burst into tears anyway. Is this a normal reaction to great news?
My emotions are getting increasingly hard to control. I want to be relaxed and easy going like I was before. I think by not talking with people in similar situations I have failed to really let me accept what has happened and what is happening.
Thanks for listening.
Live to Love
Katie
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