About jsbach

jsbach

Thanks Wombat. Folfox is the stuff, just a different way of naming it. The drug combination is Oxalipiatin Leucoverin Irinotecan Flouracil (the 46 hour one) cheers Tim

jsbach

Hi all, I was moved onto Folfirinox today after show no signs of responding to the Gemcitibine. Having gone through what's involved and the possible side effects with the oncologist, I was wondering if people could share their experiences. One of the big questions I have, is how do you sleep during the 46hr iv period.I am getting the port fitted. I have this worry sitting in the back of my mind that I will toss and turn and rip everything out. Some of the side effects seems pretty extreme. I know that different people get different side effects, but if anyone could share their experience and any thing they did do help relieve them it would be most appreciated. Take care everyone Tim

jsbach

locky I agree with the comment about blogging it. It is useful to have somewhere you feel that you have a voice. We are here to listen. I know that, when I was diagnosed, this place was a very useful forum for me. It helped me get through those early days and it still helps when I need it now.

jsbach

Ashes, Can I suggest that you see your local GP and complete a GP mental health check? This, with a referral, is what you need to be able to get to see a clinical psychologist. Just a suggestion. It's what I did.

jsbach

Hi BobH, I am sorry to hear about your wife and her cancer and agree with the advice that the others have given you. It seems that you did what most people do and turn to he internet for information. It was good to read that you stopped. My wife did that with my cancer (panreatic) and it almost destroyed her. There is far too much negative information out there and it outweighs any positive information that you may find. The only advice that I could give you which would be useful, is make time for yourself. You are going to need it and I say this after having watched my wife begin to burn herself out trying to do everything and find out everything. You may also want to consider a counseling session or two so that you can talk freely with someone who is there simply to listen. From personal experience, let her do things around the house when she is up to it. I have had a short spell where I was stopped from doing things. This was very, very frustrating as it took away some of my self identity and self worth. After all, life is not over, it's just different. When she is not up to it, she will appreciate everything that you are doing for her. Other than that, let yourself be sad, angry, overwhelmed when you need to. It helps to empty the negative emotions so that you can get up and fight again.

jsbach

I have a small fox terrier cross who for some reason became very clingie to me and would follow me everywhere. She would always come to find out where I was, often checking every room in the house. I couldn't work out what was going on and thought that it was due to her being very old. A few months later, I was diagnosed with cancer.

jsbach

Thanks for the info wombat. I've had a quick look up of things and am now a little confused as everything reads that it takes 2 days to administer. The hospital (and oncologist) was telling me that part of it was in oral form.

jsbach

well I had my unscheduled ct scan this morning. The results came back showing a few more lesions in the liver. The main tumor on the pancreas hasn't changed. To say that this was hard to hear would be an understatement. To then get told that I wasn't responding to the gemcitibine was harder still and as a result that avenue of treatment would now stop. BUT talking to my oncologist, it's not the end of the world. Apparently all it really means is that I am now part of a group who don't responsd to gemcitibine. I have a meeting with my oncologist on Tuesday to discuss the new treatment plan. I can't remember the name of the concoction, but it's a combination of three drugs and is used extensivy in Europe and the US. My onc actually suggested it to start with. She is also going to combine with a new product that, putting it into really simple terms, helps the chemo target the specific areas and delivers a bigger kick in the bum. The other good thing will be that it's only once a fortnight anot every week. So, while there was bad news today, it's not the end of the world. There's still hope and I am in a fighting mood. take care all, Tim

jsbach

does anyone else hate it when a specialist books you in for a test without giving you any reason? today, at about 4pm, mine booked me in for a ct scan tomorrow morning at 9.15. as she did not inform me herself (someone from her office did) it is a bit of a mystery to me as to why. I am trying not to let myself think that it as a result of a blood test with high markers or some other reason, but it would have been nicer to be told something.

jsbach

An update. Not 10 mins after the post, things started moving. Thankfully. Any advice on how to try and avoid it in the future, gratefully accepted.

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