Interesting, I heard that about the thyrogen (something about the company who brought out the inventing company realised they would only profit 1m per year so decided it wasn't worth it, guessing they haven't been hypo!! I'd be happy to pay for it even! :) I don't have an endocrinologist yet, amazing how we were both treated at public nsw hospitals but its different. I was lucky to get my own room after my surgery, 6.5 hour surgery (i had massive lymph node spread so needed a level 5 or 6 neck dissection as well!) and I also was breast feeding my son still, he actually stayed in hospital with me so they gave me a private room with harbor bridge views.. Shame I was in too much pain to enjoy it! In hindsight a baby & recovery from that surgery were not a good mix but I didn't have time to wean him between diagnosis & surgery) he was fascinated with pulling on my drains (I had 3!). I had one big window for my RAI room (down in the geriatric ward of all places!!) and it had a massive spider hanging down.. He became my entertainment! I promised myself if I ever strike it rich I will fund a purpose built RAI centre, pure luxury rooms like a 5 star hotel, with enough room so that the isolated person can have a verandah surrounded by lush gardens, big spa baths....just little touches to make you feel less like a leper!! Oh and Icy cold water on tap seeing as I had issues getting water to me! Oh I can dream can't I?! ... View more

Ooooh where abouts are you?! I was told I can't have thyrogen because they can't get any! Had to go horribly hypo so many times last year (think my body is still a bit out of whack!) 2 weeks is a long time isn't it! I was lucky, the nuclear med team at concord are just beautiful & one of the blokes took my scan straight to the nuclear doctor and told me that it looked great, I walked out of there with a big ridiculous grin on my face 🙂 I felt a tad guilty (as you've no doubt seen, the waiting rooms in nuclear dept are full of people who mostly aren't looking/ doing so well.) Goodluck, have a fun weekend glowing alway 🙂 ... View more

Hey! Oh I Get the crazy part.. Haha for someone who never alone, never sits still and loves being outdoors it was my biggest challenge to date! 🙂 ill never become a criminal, couldn't bear to be locked up! 🙂 when do you get your tests/results, I shall keep my fingers crossed that your worst days are behind you! Xox ... View more

Hi Cass, Such a hard hard time, my heart goes out to you. I took in a heap of little presents & letters from people (these were good!) my mum gave me a gorgeous card with. Ridiculous amount of scratchies.. Haha they passed time - lucky I didn't win 250K, couldn't run outside and jump up and down hehe. I took my kindle, magazines, chocolate! (not that I was hungry much so that didn't help much. I took my phone, stalked Facebook, did some online shopping etc. & spent a lot of time chatting on the phone to my babies, hubby and some old friends that I don't always have time to talk too. The phone was perfect. I took some nice body wash & leave in conditioner because I showered four times a day & got so sick of washing my hair, I heard its good to wash a lot. I took in old undies and bras and threw them out as I showered - and only wore an outfit in then used their gowns, didn't want to take much out of the room. A nurse brought me a bottle of cordial which I loved - I drank over 30litres of water in four days trying to flush it out so the cordial was perfect for a change! I got given a cool book called listography, it's like an autobiography but in lists of your life, I spent a lot of time filling it in and enjoying the forced reminiscing. I got given a pedicure & manicure set, one of my girlfriends gave me that with the reasoning I never get or take time out to do that, thAt passed a bit of time. You could take a facial set or something else.. I also asked for the Valium at about 8 each night so I could just sleep.. Never normally take Anything like that buy it really took the edge off, obviously it's a really tough time, I did have a bit of a breakdown while I was in there and cried until I couldn't open my eyes.. That was pre Valium - do what you need to to get through it. Sorry I'm spouting random pieces everywhere as they come to mind.please dont hesitate if you have any questions.. Will be thinking of you, and if I think of anything else I will let you know. I'm a member of a secret thyroid cancer group on Facebook, it's full of people going through or that have been through the same, let me know if you would like to join. One of the ladies there has just had her 6 year old daughter go through RAI 😞 I feel lucky now that it was me and not my babies. Xo ... View more

Hey Ash, how you going mate? Hope your doing ok, you've often been in my thoughts so I just thought I'd check back in. ... View more

Awww thanks Trace. We should become mechanics so the spanners can at least be useful huh 🙂 It was a horrible time, but hopefully that is the last of it. ... View more

Oi you 🙂 nice to see you here but not nice that you had to come here 🙂 you are one tough chicken and always have been! You'll kick ass. My yummy muscles (hahaha iPhone spell check, could have deleted it but then when have my tummy muscles ever been described as yummy - ill take what I can get!!) so my tummy muscles are still hurting from our convo the other night, even facing lifes biggest battle you almost made me pee myself 🙂 I've been thinking of you every day, my fingers are crossed for tomorrow, let Me know how you go, and of course goes without saying if there is anything I can do (or mum) please let us know Xoxoxo much love. P.s. have been wanting to catch up for ages, we didn't really need to go and get cancer in order to make time, we could have just made a play date like normal mummies do!! ... View more

Hmmm.. Made me think of a suicide bomber! I don't know, I've got nothing Wombat.. Only that some things just don't make sense.. Or is it some genetic mutation that will only occur if you are exposed to or ingest x y or z at this certain point in your life.. The human body hey, blows my mind just how complex we are. Hope you get a better answer than my blonde speculations but in the meantime I hope I gave you a smile! X ... View more

Hahahaha oh I know what you mean, I was a wild child and I'm sure this is my punishment!! One of my mates said "if it makes you feel better I never knew an asshole who got cancer, it's only the good people" hehehe she clearly doesn't remember what a downright shit I was 😃 Your right, as a mum and wife there is nothing worse than seeing your babies or your husband sick and I'm glad it's me not them! Ha bloody cancer, it doesn't discriminate, or maybe it does - does it pick us strong ones who can cope with whatever comes our way and still smile at the end of it all?! Been a long shit day. One of my best mates dad lost his long standing battle with cancer this morning. Poor bugger didn't even get to go peacefUlly, he had a horrific final 48 hours.. That's what is unfair isn't it.. If you are made to go early why cant you just go peacefully and without pain. Xo enjoy a beer or 6, because it's Monday and you can 🙂 I just may pop open a bottle of scotch myself. ... View more

Hahahaha oh I know what you mean, I was a wild child and I'm sure this is my punishment!! One of my mates said "if it makes you feel better I never knew an asshole who got cancer, it's only the good people" hehehe she clearly doesn't remember what a downright shit I was 😃 Your right, as a mum and wife there is nothing worse than seeing your babies or your husband sick and I'm glad it's me not them! Ha bloody cancer, it doesn't discriminate, or maybe it does - does it pick us strong ones who can cope with whatever comes our way and still smile at the end of it all?! Been a long shit day. One of my best mates dad lost his long standing battle with cancer this morning. Poor bugger didn't even get to go peacefUlly, he had a horrific final 48 hours.. That's what is unfair isn't it.. If you are made to go early why cant you just go peacefully and without pain. Xo enjoy a beer or 6, because it's Monday and you can 🙂 I just may pop open a bottle of scotch myself. ... View more