so sorry tropical... xxx ... View more

oh tropical... hug him and love him. my dad passed away at home yesterday from gbm. 13 months after diagnosis his decline was rapid he was up bushwalking on tuesday even getting around the house on Wednesday he needed to be sedated on Thursday...he was not there...but couldn't keep still and could not rest , (but not really able to walk properly or safely)he was so agitated. By friday he was sleeping before he passed away He was asleep and peaceful i kissed him goodnight then not long after my mum woke me to say he had stopped breathing. no struggle...just never took another breath. thinking of you this is a precious precious time xx ... View more

the cancer council has a booklet on talking to kids about cancer - i guess it's the hard news that's tricky, but it has has useful ideas about 'how to put it' to kids of different ages. if you phone them they will post one out. My dad was gbm (iv) and I needed to let my 5 year old know what was going on. She knows that when I'm having a big cry it's because I feel sad about grandpa. sorry for your diagnosis - may you stay strong and well ... View more

also...I think my dad felt better when he came off the dexmethosone too...it's great for the brain swelling..but he got quite agitated from it and affected his mood and sleep. It's such an awful shock in the beginning, such big changes to get used to...I think it's really important to get good support for yourself too...It's such a tough ride for the carers. xx ... View more

....so beautiful and touching your kindness, your appreciation on the moments you have...inspiring... so so very sad that they will becoming fewer... xx take care ... View more

My dad was diagnosed july 2012.he was 59 at the time.The tumour was on his right temporal lobe. resection and temodal and radiation. monthly round of temodal and was on a clinical trial. He was a bit spacey as his brain was realigning after the operation and memory loss was apparent. He did improve, his balance became better and his memory. He had clear scans..until about a week ago :( and about a week before that MRI, he experience what is called transient aphasia (basically he was unable to talk or understand what people were saying to him...it lasted under an hour) so yeah the last mri showed the tumour was back, very close to the original one that was removed. He is on intensive chemo and in about a week he and his medical team will decide what next?? ahhhh...the damn waiting... it's almost a year since he first went into hospital following weeks of intense headaches to find out such awful news. I'm so sorry this has happened in your family. Many people hear share your pain. take care xx ... View more

yes my dad has a primary brain cancer known as Glioblastoma Multiforme (GBM). He was diagnosed last july 2012, and had brain surgery and radiation and chemo. It is a terminal cancer and median survival is 15 months. He has been doing well until last few weeks and his last MRI scan shows that the tumour is back near the original site. Although this is totally to be expected, it's almost like when he was first diagnosed. There will be more treatment options...but each time they get more limited...and sadly one day...we won't have anymore :( it's hard to know what to do!... But i do know I want to have more wonderful times with him...and hope they won't be too few. and hope he doesn't suffer greatly. ... View more

sorry your dad has kidney cancer. It's a very difficult thing to adjust to. Wishing you many good times with your dad. Love him up. Dad's are special ! x ... View more

So sorry to hear about your mum. It's a scary to find out that someone you love has a life threatening illness! It's great you are seeking support for yourself - I think counselling can really help it tough times. I found the cancer helpline really helpful when my dad was diagnosed with cancer, and while I was waiting for a counselling appointment. I'm glad to hear your mum is doing well. She is lucky to have a child that loves her and cares so much. Be good to yourself. xx ... View more

So sorry for all your pain. your journey has been long and so hard i wish healing for you and your loved ones. please look after yourselves and each other. xx ... View more