Hi Jules2, I'm new here & am 8wks post pelvic chemoradiotherapy treatment for T4 anal cancer. Am still doing small dressings on a few stubborn spots in my 'crevices' & applying pure sorbelline cream to the newly healed skin as this is all I've been 'prescribed' by the radiotherapy nurses. I am intrigued to know whether you used the Manuka honey throughout your entire treatment & recovery, & if you used anything else like MooGoo? Thanks. 🙂 ... View more

Tallypez, it's a huge thing to have a hysterectomy especially at your age. We have to be patient I suppose with people making awkward and thoughtless comments.  It took me a while to accept my diagnosis and prognosis and finally the news that my endometrial cancer had metastasised. I really feel for the young who have to go through all the difficult decisions that have to be made. It's hard for family and friends to understand unless they have gone through it themselves. Su ... View more

I know this is old but I just wanted to reiterate how difficult it is. I am 3 hours from our hospital (we attend at least every 6mo) and on my husbands last big surgery, I ended up forking out $700 out of our savings. Due to the fact that IPTAAS gave our last reimbursment to my husband's brother and mother (who, stole the money and pocketed it and lied until we told them we knew they had received it), we were still hurt and never claimed. It is very difficult. In a sense, I am now lucky that our son will be having scopes and so we should be able to stay at the Ronald McDonald house and have my husband's scopes scheduled at the same time. I am working part-time. My husband has attempted to study but has had to defer 3 times over the last 3 years and isn't getting anywhere and I am unable to hold a full time job due to caring for him. So we are both currently on centrelink payments. I think we may have to go for Carer's allowance now that our son has been diagnosed as the constant trips to hospital are really taking a toll on our budget. ... View more