Hi my husband was also diagnosed with stage 4 bladder cancer in 2016 he also has a return of bowel cancer and the bladder cancer has spread to the pelvis. This is a devastating thing to deal with after chemo he was fine for a year all quiet now it has activated again in the bladder they are talking maybe removing the bladder ... View more

Hi Cazza My story is so like yours. I have had a 2nd opinion about resection and have been told by both that resection is not an option at this stage. I am on Folfiri and cetuximab at the moment and while my cancer hasn't shrunk it hasn't grown either. Are you on avastin and folfox because your cancer is "mutant" rather than "wild" type (lm wild)?? It's great news that your tumours are shrinking!! Your CEA count is great too and encouraging!! Please keep me posted on your progress. Sonya ... View more

Look the way I see it there's close family and really close family. My wife and daughters come first in how we handle all this, then the rest of world. It may sound mean to a mom and dad or "matriarch " however they have to understand your home family is a unit. It comes first. In a lot of cases, such as mine, I have lived a lot longer with my wife and kids compared to anyone else in the family including my mom and dad. Don't shut them out, but the fact is you are in charge. Your family is your husband and kids,period. So nut cases ....no.... Normal.......yes? God bless ... View more