About JLM

JLM

Hi my name is Jess I'm 30 years old and I was diagnosed with stage 2B cervical cancer back in October 2015 I was told it was curable and under went 5 weeks of radiation and chemo. Everything was going fine, I joined a gym for cancer patients to get their strength back. 6 months after I finished treatment I noticed 3 lumps in my neck. A pet scan showed that the cancer had spread to lymph nodes in my abdomen and my neck. Just my luck I thought! It is now called metastatic cervical cancer and is not curable, I will always have it. So in September 2016 I under went 18 weeks of chemotherapy which was an absolute nightmare, I'm so weak and mentally exhausted. But the lumps have all shrunk to where we can barely see them on the pet scan a little win for me. I was to continue with Avastin every 3 weeks to keep the lumps shrunk and hopefully they won't grow again. So, February 2017 laying in bed trying to go to sleep I feel a lump in my neck again. My heart broke. I thought no way! I'm dreaming this can't be. I wake in the morning praying it was all a dream, I feel my neck and sure enough there is a lump! I cried that whole day. So another PET scan later I find out on my birthday that Yes! The cancer is growing again. Some birthday present hey! Anyway, I'm about to start a trial for 3 sessions of high dose radiation on my neck and 12 months of Immunotherapy. I'm petrified. What if this doesn't work? I guess we will just have to wait and see. Has anyone had the immunotherapy?

JLM

Hi RoseAdelaide, I'm sorry to hear that you are self funding that must be a huge burden. I guess i am wondering how you are feeling?? Have you had many side effects yet?

JLM

Hi, I am just wondering if anyone has had immunotherapy? I am hopefully about to get into a clinical trial of immunotherapy with a bit of radiation. The doctors have explained everything to me, but I want to hear from real people who have had this treatment. I'm wanting to know about side effects if it's just like chemo or nothing like it. Thanks for your help xx

JLM

Thank you so much, I really needed to hear that. I guess I was just hoping to be back to my normal life by now, it's hard when your mind wants to do something but you just can't. I feel like people have forgotten I have cancer, because you can't see it and it's frustrating for me to try and do the things that I used to do. You need a good pat on the back, I didn't have the courage to do a trial. I guess I was a little selfish thinking I could just have my treatment and move on, it's definitely hard than it looks. I'm sorry to hear your not feeling well and hope it doesn't last too much longer for you. Your an amazing person for being so brave. I thank you

JLM

Hi I need help, I finished my treatment of chemo and radiation a month ago and I'm struggling to find energy. By the time I get up and get myself ready for the day, I'm exhausted. It's so frustrating as in my mind I can do things but my body just won't let me. I have to force myself to walk my dog twice a day but I am so exhausted afterwards I just lay down for hours. Does anyone have any tips or tricks to get energy and motivation back?

Metastatic cervical cancer

Re: Immunotherapy

Immunotherapy

Re: Struggling

Struggling

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