April 2016
"Hi (& a BIG thanks) to ALL those 'above' whom had commented on Jane's post to a hello to those 'carers' to those fighting cancer in reading my post now".
Thoughts & prayers to you ALL :)
Personally (as a carer & to being a loyal & loving friend whom is going through such a terrible life-changing & testing times); experiencing cancer in my life ...... so sucks. Pardon my language.
Over recent years I have heard of others (not so close to me) being affected by cancers; either of friends, partners & family members with myself (or my life) now being inflicted with such helplessness; grief; uncertainty & utter sadness.
At times I feel anger too (though kept inside 99% of the times when together) to myself; upon being inflicted with words against me. While my intent is purely to help.
When all i do (I try my hardest) best to assist in support; out of love; compassion to understanding.
Being the ONLY person in my friend's life; I purely understand a 'carer' (of any description & circumstance) is a 'sounding board' to vent such anger; frustration & hurt.
Sure certain 'personality types' have such 'traits' to be a certain way RE to be critical to over analyze others to actions by others; to even words.
Having cancer sure does 'bring-out' certain traits ('as above' paragraph) even more :(
Every visit; I am faced with possible treatment; though as one does (which Ive learned very quickly after early diagnosis last year). we have to 'take-it-on-the-chin' & try not to take it to heart with such attacks of our support; whichever it maybe.
Reacting to such treatment ONLY ends up with silly to heated arguments; only to work-up blood pressure to discontentment towards us.
Though sure is lovely when I get the apology soon after such 'words'; when my friend realizes of 'lashing-out' to me.
In ways I understand why one does this; especially when there's no one else around.
It is great to still visit my friend regularly (every week) to sms-ing twice a day; once in the early morning to one in the early evening to maintain regular daily contact. So I know how my friend is feeling & thinking.
'Routine' is so important when caring for a friend going through cancer. Even though (as carers & friends) we may not feel like it; it is our duty to persist to putting them 1st.
So great to be appreciated (& thanked) to do the small things for them; that seem big things if they were to do it themselves though being too weak to do so.
'Biting our tongues' is surely the best thing to do; when our beloved ones battling to fighting cancer lash out against us.
Every day is different; as is everyone is different on how they respond. Though always feels awesome to making a (BIG) difference to them in their time of need.
Love, Light & Peace to you ALL.
Sincerely,
Steve :)
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April 2016
Hi kj,
Thanks for that 🙂 How are you?
I had told my friend (whom is going through chemo RE from pancreatic cancer) of your experiences.
Much appreciated.
To understand more of your journey & to relay this to my friend; questions were asked to me of you 🙂 This will help my friend enormously for comparisons to better understanding.
Can I ask? OK too, if you do not wish to dwell further. I totally respect this :)
1. How long did you have your chemo before you decided to discontinue due to making you so ill? My friend has just completed his 1st round of chemo (once a week for 3 weeks via drip); to now 2 weeks off. My friend thinks the 3rd dose was higher (?); making sickness worse with stomach crampings to a lot more nausea than the 1st & 2nd treatments of chemo.
2. What chemo drug were you given? And were you 'part of' a research trial? With my friend being 'on-a-trial-for research'; such information of 'dosages' are not disclosed. Though two days of steroids were given at day of each chemo treatment; to take twice a day for two days after chemo. Once this wears off; the 3rd to 4th day afterwards are the worst days :(
3. How many years now since you in remission? And how is your nutritional diet changed to 'how much' you can eat nowadays?
4. Have you had any assistance from the Government RE of a Disability Support Pension? As my friend is seeking this RE DSP; though only able to get Newstart Allowance; though able not to look for work at this stage. DSP will not be accepted until the Doctors & Specialists say my friend is 'terminally ill'. Such a prognosis will possibly be two to 5 years away.
Upon telling my friend of me seeking help from others in the same 'circumstances' (through this awesome website of 'Cancer Connections'; to possibly meet, has met with almost hostility. I understand; though I only 'act' on what is said to me from my friend. As I intently listen & try (my hardest best) to learn & to assist with what is being said to me :)
So any information passed on here (regarding the answers to the 'above') will make it better in understanding how your journey relates to my friend's journey.
"Thanks again kj"
Sincerely, Steve 🙂
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March 2016
Hi "kj" :)
"Thank you" so much.
Well done on being in remission too for nearly 6 years.
Can I ask; did you have whipple surgery re pancreatic cancer?
"Thanks" for your valued tips & advice too; much appreciated.
Hope to chat some more with you later; OK if not too :)
All the very best to you as well.
Sincerely,
Steve 🙂
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March 2016
OH terrific!
"Hello to you Karen & to others here"
"Thanks so much Karen" :)
Will look into this now & grab a copy :)
Once received & watched; I will reply here with another 'follow-up' post RE of this DVD.
Take care.
Love, Light & Peace to you & others here.
Sincerely,
Steve :)
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March 2016
"Greetings to you Zoe & to you all" here; whom are reading this post & thread :)
Trust all had a good long weekend Easter break (2016).
Thank you so much for sharing your journey & experiences with us here dearest. My heartfelt wishes & prayers to your mother Zoe.
Am so happy I have found this website of 'Cancer Connections' through the Cancer Council.
Please pass on to your mother of my thoughts & from my dearest friend whom is also just finished his 1st round of chemo last week (24th March 2016).
My friend urgently needs to meet others whom are going through the same as him RE of pancreatic cancer. I see you & your mother are seeking the same.
My friend is 60 years old also.
Please read my 'profile' to also my recent & 1st post on the 'Introductions' forum.
I will contact you privately now.
Hope to hear from you soon; to hopefully arrange a meeting with you & your mother.
Love, Light & Peace to you; to your mother & to you ALL here as well.
Sincerely,
Steve 🙂 xox
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March 2016
Hi Greg,
"Thanks" for your advice & tip re ginger tablets.
I will pass this onto my friend whom has just finished his 1st round of chemo last week (24th March 2016) from pancreatic cancer 'whipple surgery'.
Please read (& others whom are reading this post & thread too) of my post RE 'Introductions' (posted today as well) to also reading my profile for my background to reasons why I am here.
"Thanks to well wishes to everyone here"
Love, Light & Peace to you ALL.
Sincerely,
Steve 🙂
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March 2016
"Hello to ALL here whom is affected by cancer" (my thoughts & prayers to you)
My name is Steve & am 46 years of age, from Brisbane (on the southside) Queensland Australia.
Reasons why I am here & have joined this wonderful support of 'Cancer Connections' group, is my wish & hope to make contact to anyone whom is currently going through pancreatic cancer (whipple surgery) to recovering from this operation to going through chemo therapy (especially whom is being 'trialed through research' of combination drug chemo) either here in Brisbane Queensland (through Royal Brisbane Hospital) or anywhere here in Australia.
Past 8 months (to the present day: 29th March 2016) I have been supporting my dearest friend whom was mysteriously ill for months mid last year without knowing why. Being nauseous; weak; headaches; abdominal pains; loss of appetite to later being jaundice. Jaundice being the symptom that prompted more tests to the diagnosis of pancreatic cancer.
As a loved one; seeing him go through surgery (a few days before Christmas last year of 2015) to post operation; dealing with nutrition to now chemo, is extremely awful to witness. To being terrible for my friend.
I have been there (& always will) be there for him. Assisting him with food shopping earlier on (when he was too weak); cleaning his apartment to washing; cooking meals (though I need to cook the right foods) to being by his side through the regular hospital & DRs to specialist appointments.
At this stage my friend needs to talk (as you can imagine) to other pancreatic cancer patients to survivors. He talks to other cancer patients at hospital when we go in; though he needs to share & hear others experiences to getting other advice.
He has just finished his 1st round of chemo last weak (once a week for 3 weeks; then 2 weeks off).
He is on a research trial of chemo for 6 months; involving two (2) combinations of drugs. These are: 1. nab-Paclitaxel (drip into vein)and; 2. Gemcitabine (drip also).
Again, if there is anyone here whom is going through pancreatic cancer; please contact me, as my friend wishes to meet & talk with you. Hopefully both will be able to help each other.
Difficulty with him at the moment is nutrition; pains & appetite.
Today (29th March 2016) he has just told me his hair is falling out. Which he is OK with. Though he's feeling pretty awful from the last chemo dose last Thursday. Tuesdays seem to be the worse day for him with stomach pains & cramps to nausea.
If anyone can help him (to meet & talk) again; please contact me. He lives in Bowenhills Brisbane; near the CBD.
"Thanks to you ALL".
Love, Light & Peace to those affected by cancer to those loved one's by their sides.
Sincerely,
Steve :)
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