Hi Budgie he went into the operation and half way through they abandoned it due to complications with bleeding. Apparently the tumour has spread to the surrounding tissue of his right kidney, with extensive tumour caking in the IVC wall up to the level of the liver. It was also wrapped around the portal vein as well. When they tried to cut out the kidney they almost lost him due to extensive blood loss so they stopped, controlled the bleeding and the stitches him back up. The small biopsy they took to see what type of renal cell carcinoma it was came back negative for cancer as they took the wrong part of the kidney. The surgeon said that due to the spread of the cancer they felt it would be a rare aggressive type of RCC that wouldn’t respond to any treatment so it wasn’t offered.    I’ve lives in Newcastle my whole life. But love the beaches there they are the best 😀 ... View more

Hi annette   thanks for your reply. He did not realize he had kidney cancer until November last year when he was started getting symptoms of blood in his urine.  He had some involvement with an oncologist at the Mater however they said nothing could be done so he hasn’t had any other treatment and was discharged home with the info that he will eventually get worse and die. So just biding our time.   I have contacted cancer council and referred him for counseling  ... View more

Hi @VickiP my name is Jess I'm a 31 yr old survivor of uterine cancer. Sorry to hear about your recent diagnosis. It certainly is a huge shock when it happens and I know how difficult it can be to tell others about what's going on too. When you do, expect the flood of people who will say "if you need anything just let us know"..... My advice is to take people up on that - if people offer to cook meals, do your dishes, come round for a cuppa, take the support you can get as it's very lonely and hard to walk this journey without support.   A little about my journey - I started showing symptoms (heavy flooding periods) in Jan 2016 and it wasn't until September that year before I got my diagnosis of grade 1 stage 1a endometrial cancer. I wasn't believed for ages because I'm not in the age group common for this type of cancer. Oringinally treated with the Mirena IUD to preserve my fertility, by November 2016 I had progressed to grade 2, stage 2 and ended up been given the choice of radiation or surgery. I chose surgery - however due to my weight I was refused surgery and instead underwent treatment with the only option left to me. I had 28x external beam radiation treatments and 3x intrauterine brachytherapy treatments.   I was given the all clear in June 2017 - and have just passed my 12 months of survivorship. Currently I am a carer for my husband who has terminal kidney cancer that is untreatable and inoperable. I am a widow in waiting whilst we continue this journey to see how long my husband will survive. He was given 3-6 months life expectancy in March 2018. We are now almost 4 months later and still amazingly he is with us still. Each day is hard but we get there.   Hope to hear from you soon and hope you are doing ok. Jess ... View more

Hi Steve,   I'm Jess. Sorry to hear how difficult things have been for you. I'm a cancer survivor (had endometrial cancer 18 months ago). I'm in remission now, but since December 2017 I have been rocked by the news of cancer again as my husband Tony (62 yrs old now) was diagnosed with stage T3b kidney cancer. He underwent a radical nephrectomy in March 2018 however once the surgeons opened him up the cancer was already considered stage 4 and so the operation was abandoned and kidney with the tumour in it was left inside him. Unfortunately there are no treatment options so we are just waiting to see when he dies eventually, although we were told about 6 months life expectancy around 4 months ago. So who knows how long he has.   Been trying to reach out to someone who's in a similar situation, as it's hard for us both to understand how this disease is going to progress and what symptoms to look out for when he gets closer to death. Hope you are as well as you can be.   Jess   ... View more

Hi Budgie and Annette46   My husband has been diagnosed with stage 4 kidney cancer in December and had his surgery in March this year. unfortunately he was found to be inorperable and there are no treatment options. We are looking for someone to connect with. We also live in Newcastle/Lake Macquarie area   Jess ... View more

Hi forgums Sorry to hear about your diagnosis. It sounds as though you have had a horrific ordeal and I hope you have a good support network. I have recently been diagnosed with endometrial cancer stage 1a, grade 1 and am currently playing the waiting game for my next D&C to see if my treatment is working or not. ... View more

Hi MGS I was diagnosed 7 weeks ago with endometrial carcinoma grade 1, stage 1a. Currently on Mirena and 3 monthly dilation/curettages as I am not a good candidate for surgery. How is your treatment going?? ... View more