hey, i'm in the same boat as you. My dr said i will be on some form of chemo for the rest of my life. I have stage 4 colorectal cancer with mets to lungs and liver and was diagnosed 9 months ago. I'm on folfiri with cituximab so have fortnightly treatments and get the lovely bum bag and pump to take home as well. When i was first diagnosed it was a if they hadn't picked it up i wouldn't of made x-mas but since starting treatment i had 4 tumors in my liver and now only have 1 large one and my bowel lining isn't as thick and the 2 in each of my lungs are down to mm instead of cm. the lung tumors in the last scan have strated growing again but are still only mm which is why he introduced the cituximab iv had 12 cycles so far i'm still inoperable and they won't do anything until my lungs are clear but Dr. B is now saying that if we get rid of them we can look at surgery. Don't give up hope. Enjoy every moment with your kids and grandkids that you can, the fact that you are still helping them out when you can is great. And your tumors have shrunk!! that is great news. I also struggle with feeling like my life revolves around cancer with chemo, blood tests, scans etc but you need to remember why you are doing it and why your are going through it. Every day you are able to help out or spend time with family is a reminder of why you are doing what you are doing. i'v started meditating and walking on my good days as well and i feel that helps (but i think it's more a control thing because i can't control the cancer or my reaction to the chemo but i can control what i'm eating or when i'm exercising) but also fishing it's one of the things i can do when i'm not 100% and being outside always seems to make you feel more motivated. and if you do it off the rockwalls you will always find someone to have a chat with. No one expects you to be positive all the time it's to hard, but if you focus on the now instead of the what might be it makes everything alot more easier to cope with and enjoy the little things. I wish you all the best on you journey, nikki xxx
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update: spoke to my dr and he said if you would like to do it you need to register with the police which is a form that you need to get the dr to sign to say you only have 12months to live. thats so if you get drug tested it's ok. but... i don't think its cool that they put time restrictions on everything, like the councilor told me i should get my super out but to do that you need 2 drs to say you are going to die within 2 years. I feel like with cancer you try your hardest to stay positive and not to give up hope but then you are constantly made to face your mortality and be reminded that your expiry date is nearly up. I don't know thats just my experience maybe. Hope everyone is doing well xx
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Hey eveyone, I was diagnosed with colorectal cancer with mets to liver and lungs 7 months ago and since doing chemo all has been going well and shrinking etc until my last scan results and the tumors in my lungs have started growing again. Since getting the results its put me in a bit of a low and i can't seem to get back to the right mind frame i guess. I know my treatment is for longevity and quality of life but i have kids so i was like i will do what i need to do to stay with them but after the results it was the first time that I've thought there is a chance that i won't beat this. I'm just wondering if anyone has tips or ways they deal with crappy results and bringing themselves out of the funk. Thank you 😊
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.