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Quijote
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March 2009
November 2016
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March 2009
I had to share this with everyone. I just finished reading Lance Armstrong's biography "its not about the bike" and its inspiring'. for those that don't know, Lance developed testicular cancer and was given little chance of recovery. He did recover and went onto win the tour France several times. A grueling bicycle race. His story is of hope no matter what the odds and of transformation through the cancer journey. It also highlights the bond within the cancer community. take care, be strong.
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March 2009
One thing that is not clear to me is how the xpertise of cancer is organised in Australia. I see so many websites for different groups that it gives the impression that we are well resourced, yet in my current circumstance where there is a difference of opinion as to the category of cancer/HL or NHL that I have, there does not appear to be an organised chain of command or authorty to determine the diagnosis and subsequent treatment. Am I wrong, is it in the end left to the treating specialist without any checks with a higher authority? Chemo is my next option and given its consequences from side effects, I would have thought it would require a more extensive review process. Any thoughts or comments would be welcomed.
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March 2009
Just a quick note to all bloggers. Despite all the "symptoms" in my head, I have now passed a second CT scan with clean results. Now back playing sports and working FT. BTW, I've gone blonde just for fun. would like to hear how others are doing. take care all.
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March 2009
Survivorship... I read about it first in lance Armstrongs book and now I trully know what it means. Evry little cough, itch or rash could be something. Am I sweating too much etc etc. I know that I will get over it with time, but its a constant on my mind. Anyone else out there with the same?
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March 2009
I just realised that it sbeen three months since I last wrote in this discussion thread. Hard to believe, three months in remission. I feel good but suffer from survivorship, the constant naggling that it could come back. Anyway, just wanted to wish all readers a very joyous Christmas and the contnued strength for this journey that has been laid out for us. Drop me a line on anything... take care, be gentle on yourselves.
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March 2009
Hi, new to this with just having received news that I have Lymphoma. Its yet to be categorised so the treatment is yet to be prescribed. Boy, this is scary stuff and I am glad to have found this website to share some of this. Your own stories do help me understand that I am not alone. As for me, 46YoM, two great kids and a beautiful wife. Life was going to plan when out of the blue this comes out. Anyway thats it for now, but it looks like you have a new team member. I look forward to hearing from you.
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March 2009
I write this post almost six months to the day that I started it. Incredibly its also two weeks since my doctors said that my cancer was in remission and the scans came back clean. This has been quite a journey, emotionally and physically. Is it over? I guess I will always live with some fear that it will come back. But I have also learned to live each day more fully. Take care and be gentle with yourselves.
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March 2009
I am adding this message because I see that it gets a lot of hits (views) and I would like to offer our community something. My guess is that the title of the post is what attracts people especially those who like me are newly diagnosed and feel like a giant hole has just opened around them. Its not a good feeling. My message is simple, take a breath, cancer trully is a word that describes many things and each is differentto each person. Yes, its serious, but as far as I know its never a black and white situation and in every case there is hope and some wonderful science. Work with your doctors, get involved and look at each step in turn. Do not jump too many steps ahead and do as we should all do anyway....enjoy every day regardless. I hope you find my simple message useful. take care..
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March 2009
5 chemo sessions down, 1 to go! would like to hear from other HL or NHL sufferers.
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March 2009
did you ever get an answer to this? I am coming upto cycle 6 (last one hopefully) and sideffects have been minimal so far. cheers
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