September 2012
I have not been here for quite a while. I had to limit my time here a few years ago when my university studies became more time consuming. I finished my studies (Bachelor of Arts (ART) ) at the end of last year and graduated early this year. Then in March this year I started my Master of Art Therapy. The day after the first day back for second semester, my leukaemia from 2005 relapsed.
Almost 7 years after my initial diagnosis, a relaps at this stage is bad - it means the relapsed leukaemia is stronger and harder to treat. I was in hospital having re-induction chemotherapy fpr all of August and into the beginning of September - I went into remission and now I am going to a different hospital for a Bone Marrow Transplant. I'd be interested in speaking with anyone who is familiar with relapsed ALL and/or BMT.
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September 2010
Yeah it is nice to be known as a survivor, but my cancer experience left behind a lot of secondary damage in the form of a Traumatic Brain Injury (TBI) - an infection whilst immuno suppressed from chemotherapy has left permanent damage and while I can relate to you and your Mum in terms of friends who don't know how to be there for you, so they leave - my boyfriend couldn't handle it when my hair started falling out, so he left...but on the positive side, I have just 3 fantastic girlfriends who don't treat me any different to how I was before...so I hope you and your Mum have a couple of those good ones - you only need a handful of GREAT friends to get by (in my opinion) and you've got this site to vent (I'll look for "No Voice" and say hi to her too).
Once again, you are a wonderful human being and once I get all the medals done, I'll send you one *wink*.
Take care,
Artist_in_Recovery.
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September 2010
Absolutely - GO YOU, you are doing a fantastic, miserable, heart breaking job and you all deserve the praise and acknowledgement of everyone...I'm not a carer, I'm a survivor, but everyone around me who took care of me in my darkest hours deserves a great big medal!!
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November 2009
July 2010 Jules...hasn't happened yet - I'm getting excited though - my diagnosis in December 2005 took a big chunk of my planned travel time, so I'm going to travel around the UK like I should have done back then!!
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November 2009
Before I go completely stir-crazy sitting in my little one-bedroon unit getting up every morning to study all day, attempting to avoid spilling paint on the carpet and stressing about my marks...
I'm leaving on a jet plane - flying back to London on July 3rd next year.
My Mum is still over there and she goes on summer holidays at the end of July, so we're driving around the UK for 5 weeks. England down to Wales, up to Republic of Ireland, on a ferry up to Northern Ireland, across to Scotland and back down through northern England and London to Kent where my Mum lives.
I'm so excited because I didn't get to see the rest of the UK when I was there - leukaemia threw all my plans up in the air.
I'll not enrol for the one semester from June to August and recommence when I come back at the end of August with a refrehed head!!
For the first time since my diagnosis I have something wonderful to look forward to...it feels great, albiet a little precarious. I get a bit suspicious/skeptical/pessimistic when good things happen now, waiting for something to go wrong...
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November 2009
Yes Sailor, Santayana is great. I also had a little quote I liked during my treatment: Life's tough, get a helmet! - Unfortunateky I can't remember where I got that from and although it's not originally mine, I've adopted it and my Dad thought it was such a good attitude to have that he "Googled" the word helmet and found a couple of little Bob the Builder toys on Ebay with helmets and he sent one to me with "Life's tough, get a helmet" written on its t-shirt!
I agree with you about the word google - it's become a verb everyone uses daily. When I lived in England, people would say things like "I need to Hoover the carpet" - instead of vacuum - same goes with google!
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November 2009
I just found my journals from after I was diagnosed in London in December 2005. Here is an excerpt:
"Neuts not budged from 0.02 all week until today - 0.08! A small victory, Tomorrow's results will be the test, up or down - what's it going to be? Mucositis, thrush in belly, fluid in the knee caps, itchy skin, peeling lips, thining hair, massive weight loss and a generalised misery that comes with having had enough.
Is it time to go home now? Do I want to go home now? Where is home? Chris came tonight - we cried."
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October 2009
It came as a shock, then as a bit of confusion - I get the connection, some cancers are more "socially acceptable" I suppose, but SEXY???
I just keep remembering when my hair started falling out and I was having a particularly "up chuck" day - so there I was in hospital, connected to the chemo pump, going bald and my boyfriend (who later decided it was too much after all) holding the cardboard emesis basin under my chin for 3 hours!!
Whoa - sexy stuff huh??
There is a website I know of that may be of interest to some:
www.crazysexycancer.com/
In my view, cancer is cancer, whether it invades your breast, your anus or your blood, but I do agree that some are given more thought and acceptance than others and I think it's disappointing.
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October 2009
http://www.youtube.com/watch?v=BeioJA4ApX4
Hi Kym,
This guy is a friend of mine and he always managed to make me laugh - this is one of my favourite clips of his - I hope it cheers you up too - even for a few minutes...
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