Hi there Karlz9, Oh my, you are amazing!  Thank you for sharing. I opened your link and read Sandy's story.  Amazing!! How are you doing at this point? My elastace is at 24 and not sure what this means other than they gave me proton pump inhibitor which has helped w nausea.  Awaiting results of endoscopy biopsies and curious as to what they will decide to do if anything,  w my pancreas.  We shall see. I wish you the very best.  You seem like such a strong person.  A good example for me since I am a bit of a wimp.  Thank you again for sharing.  Peace     ... View more

Oh Tom, how horrible for you and your family, to be dealing with that!   When I got my diagnosis I was freaked out that it was in the liver, but relieved that so far (touch wood) it hasn't gone into the lungs.  I did manage to develop blood clots in the lungs, but hopefully the cancer will stay out of there.  Mine was in the liver, too - so much so that it was initially inoperable.  I, too, have been doing chemo every fortnight (and isn't that fun?) so I can sympathise with your wife for the probably limited days she's feeling even remotely well.  I have the three drugs on the Thursday, with the takeaway bottle for the next two days... also high on my list of stuff I'd rather do without.   It does tend to shift the goalposts a bit, when the cancer goes wandering.  Mine's reduced somewhat, enough that they now think operations are a possibility, however, I'm always aware that it could decide it wants to grow again.  So my deepest sympathy for your wife there - it's so horrible when you've got yourself braced for the operations, only to have that change so suddenly.   I'm glad she's off the oxalyplatin.  That's yucky stuff.  My own neuropathy has been getting worse, so I suspect that's a big factor in the oncologist deciding to stop that treatment.   There's a clinical study being done by QUT, Queensland Health, and UCSF (?) into chemotherapy induce peripheral neuropathy  (CIPN) which is seeking to alleviate symptoms using home based therapies (heat and massage).  The website is research.qut.edu.au/real/cipn/  if you think that may be of some use.   My own philosophy has changed to "que sera sera" but I hope your wife's strength of character wins out over this pernicious disease.  Sending hugs and love to you, your wife, and your little one...    Hugs, Pauline ... View more

https://www.sciencealert.com/new-t-cell-therapy-kills-most-human-cancer-types-and-might-work-across-individuals ... View more