Firstly, thanks Captain Australia - I always enjoy your posts.   Livingwithhope - Is the surgery you're talking about the Ivor Lewis procedure? How is your partner doing now? I had the procedure on 14 May and while I came through the surgery quite well, I'm now struggling with eating. ... View more

Thank you for the words of encouragement sch.   I am trying to take one day at a time and not worry about tomorrow. That's all I can do for now. ... View more

Thanks for your quick reply Linda.   I'm frustrated as now that I've had the procedure, there's no going back so I have to make the most of what's left of me. 😞   ... View more

I'm not a player sch, but do love music 🙂 ... View more

I won the cancer lottery and have 2 separate primaries - esophageal and soft palate.   I finished my treatment (35 x radiation and 2 x chemo) in early August and am currently struggling with swallowing and trying to eat again and am awaiting a PET scan to see if treatment has worked.   I'm therefore thinking about what will happen if the treatment hasn't worked and there's nothing else to be offered.   Anyway on topic, I'm not a very spiritual person and lean toward the 'we are just meat suits' theory and upon death it's just the big sleep.   However I find myself watching TV and thinking 'Next time round, I'm going to have beautiful teeth like her/him' (I have awful teeth). So something inside me obviously instinctively believes there is something after. ... View more

Rock on Garth! 🙂 ... View more

I'm sorry you're feeling that way Seilien but I can totally relate.   There's a quote from my favourite TV show 'Six Feet Under' - 'There's just 2 people in the world, there's you and there's everybody else'. That's what this diagnosis feels like, no matter how compassionate and supportive friends, loved ones and the medical professionals are.   I'm booked in for a gastroscopy tomorrow to see what this thing is in my esophagus and am terrified. ... View more

Thanks for your post Seilien and am sorry to hear about your current predicament. Even though the doctors I've seen have been wonderful, like you once I've been passed on to the next I then have no-one to contact and it's terrifying not knowing. I try to not let this overtake my life but it's hard not to - wake up with it, go to bed with it, and every time in between. Do you have a support system that can help? ... View more

Thanks for your kind words Bowie.   The feeling of isolation appears to be a common theme. However being part of this community makes me feel less lost.   I hope you're on the road to recovery. ... View more