About Angel_B

Angel_B

I'm not a player sch, but do love music 🙂

Angel_B

I won the cancer lottery and have 2 separate primaries - esophageal and soft palate. I finished my treatment (35 x radiation and 2 x chemo) in early August and am currently struggling with swallowing and trying to eat again and am awaiting a PET scan to see if treatment has worked. I'm therefore thinking about what will happen if the treatment hasn't worked and there's nothing else to be offered. Anyway on topic, I'm not a very spiritual person and lean toward the 'we are just meat suits' theory and upon death it's just the big sleep. However I find myself watching TV and thinking 'Next time round, I'm going to have beautiful teeth like her/him' (I have awful teeth). So something inside me obviously instinctively believes there is something after.

Angel_B

Rock on Garth! 🙂

Angel_B

I'm sorry you're feeling that way Seilien but I can totally relate. There's a quote from my favourite TV show 'Six Feet Under' - 'There's just 2 people in the world, there's you and there's everybody else'. That's what this diagnosis feels like, no matter how compassionate and supportive friends, loved ones and the medical professionals are. I'm booked in for a gastroscopy tomorrow to see what this thing is in my esophagus and am terrified.

Angel_B

Thanks for your post Seilien and am sorry to hear about your current predicament. Even though the doctors I've seen have been wonderful, like you once I've been passed on to the next I then have no-one to contact and it's terrifying not knowing. I try to not let this overtake my life but it's hard not to - wake up with it, go to bed with it, and every time in between. Do you have a support system that can help?

Angel_B

Thanks for your kind words Bowie. The feeling of isolation appears to be a common theme. However being part of this community makes me feel less lost. I hope you're on the road to recovery.

Angel_B

Hi all. This is my first post. I was diagnosed in early May with soft palate cancer. All was ready to go for 7 weeks radiation and all that was needed was a PET scan to confirm that there was no spread. It was supposed to be just a formality. Well when the scan results came back, it showed a 'hot mass' in my esophagus which surprised all in the MDT and of course me. Now I'm back at square one, with an appointment to see an upper GI specialist this Wednesday. I feel so lost, frightened and isolated. I live with my husband who's pretty much in avoidance right now. The rest of my family live in different states/territories. Now that I'm between specialists, I'm at a loss to know who I can contact to get more information as I was rendered pretty much speechless when I got the news. Is anybody in the same boat as me? The treatment for the soft palate cancer has been deferred until it can be confirmed whether or not I have this second cancer and if I do, that will have to be dealt with first and then I'll have to deal with the soft palate cancer. I've pretty much given up hope.

Re: Eddy Van Halen

Re: We all have to face the end. What do you thin...

Re: Eddy Van Halen

Re: Well it looks like I have 2 separate cancers

Re: Well it looks like I have 2 separate cancers

Re: Well it looks like I have 2 separate cancers

Well it looks like I have 2 separate cancers

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