Hey Jill
Sending hugs your way. You are doing a fantastic job keeping it all together. Its hard to deal with the cancer and the grief of losing the person your husband used to be. While you bear the responsiblity of being his primary carer dont forget also to fulfil your needs. Do everything you need to do so you have a reservoir of memories to tap into in case he gets worse. The last few months of my husband's life, our relationship was filled with such tenderness. I eventually was able to accept the "new" him and to go with it and take whatever he could give. We spent a lot more time talking about nothing in particular, like every day was another lazy Sunday. Dont let the cancer be the focus of everyday, life should be the focus.
My hubby also lost his ability to self-censor and I remember one time when we were in a queue and the person before us held us back and let some others through (he had been standing for about 15 minutes by then and just wanted to get in to sit down before he collapsed) and he called her a not so nice name. It bothered for all of 15 seconds because I realised that how she felt should mean nothing to me. Who was she to treat him that way just because he was six foot tall and there didn't seem anything wrong with him (at least not on the outside). Its not his fault that cancer has taken his ability to self-censor so people are just going to have to take him as he is...no need for you to feel bad.
I guess what's hardest about the process is the need to face one's own mortality.
Keep up the good work and if it helps to talk then blog and make sure you get your share of hugs (thats what I miss the most).
Regards
Sangeeta
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