Hi Traci-Rene'e,   I know exactly what you are going through.  Cancer destroys everything in its path.  Like you and your husband we had so many plans.  I feel helpless.  I am very happy that your husband realizes how lucky he is to have a wife who loves and supports him like you.  I am very sad to hear about your Mom.  She is your angel and she will guide and protect you.  As of now, nothing has changed and it is unbearable.  I just want to love and support my wife through this horrible illness.  She is very angry at me.  99% of the time I am very patient but sometimes I ask her if she will ever stop being angry at me.  I've apologized for things that I don't even know that I have done.  It just seems that there is nothing that I can say to make things better.  Prior to her diagnosis like any other married couple we would have a disagreement and in a day or so it would be okay.  Once this happened, I am public enemy number 1.  It really hurts.  I just want my wife to stop ignoring and rejecting me.  I am not looking for anything in return...just kindness.   You and your family are in my prayers.   Your Friend,   Ralph ... View more

Thank you for all your thoughtful and encouraging messages. And thank you again to everyone who contributed with ideas. Many of those were used. MC's (Midnight Cupcake) friends were fantastic and came to visit her regularly even though MC could not take part in their conversations and activities anymore. She just listened and smiled. MC's family is simply amazing. They packed so much love into the time they had left with her, spending each moment together. Just a few days ago they made a special garden under MC s supervision, using roses that share her first name. A friend said the following to me today: If this was always to be [MC's] destiny, she was definitely born into the perfect family. Without using the exact quote, her mum described her passing as beautiful, peaceful and spiritual. The sadness and loss will always be felt by everyone; but this beautiful girl will always have a special place in our hearts. With a heavy heart, Bee ... View more

Melissa I am so very sorry to hear of the loss of your Dad. I absolutely love your comment: 'He held me and watched me take my first breath in life.....and I held him when he took his last' That is beautiful and I have never looked at it like that. I held my partners hand as he drew his last breath and would never change it for the world, but your words brought a smile to my face. A smile that rarely shows. So Thank you and thankyou for sharing your journey. I lost my partner to a GBM4 on 8 May 2011. ... View more

Hi Km The first couple of months after the initial diagnosis is a blur of what ifs and other questions. My husband was diagnosed with GBM last March and we lost him in December. We were told he would have anything between 7 months to 2 years. He lasted 10 months. I wouldn't say there is a balance but I'd recommend you think about what you want to do for your mum and what you need to do with your mum for you to be ok should her time be limited. We are the ones who have to pick up the pieces of what's left of our lives when they move.Leave nothing left unsaid...that helps with the grieving process. Also factor in what she wants to do. My husband worked 3 days a week right up to 4 weeks before he passed and I had to facilitate that by driving him to and from work. The drives to and from work (about an hour each way) gave us time away from the girls (we have 2 little uns) to talk about everything and nothing in particular so in facilitating his wish I filled my memory bank with many precious moments. All the best and know there are people here to listen. Sangeeta ... View more

Hi Lisa, My name is Veronica. I am 31 (just turned 31 in Jan) and I also just lost my husband, Simon (36) to GBM in Oct 2009. It's hard... We met when I was 18 and have never been apart until now. We have a 7.5 months old son together and I am terrified of the future!!! Lisa, I am soooo comforted to have read your post - I now know I am not alone (felt like it though). I try to smile, I try to get on with things, I try to breathe but it all takes a lot of effort. I know what you mean about friends and family going back to their own lives. It's lonely out there but I feel bad asking them to stay a little longer. I am feeling so many things at once that it is hard to differentiate them. I like to constantly talk about Simon because it makes me feel good but I know people are looking at me strange. Why should they feel uncomfortable when it is me who is grieving? Lisa, I hope we can be in touch. I hope we can help one another somehow. I hope we can both heal and learn to smile and laugh again. I want to take a full breath of fresh air without feeling the tightness in my chest. ... View more

My problem with private facilities asking for a dnr to be signed because they dont have the resources to deal with the person if something goes wrong is (am assuming this dnr follows you around wherever you go to different facilites) what then happens if you end up in a facility that does have the appropriate equipment and they could have revived you and simply didnt because there was a dnr from the private facility in place? ... View more

Hi Kelly, I am so sorry to hear that your sister has passed away. Life can be so cruel sometimes.Sending love and best wishes to you and your family and thinking of you and hope you get through today OK. Gail xx ... View more

Thanks for all the messages guys, just want to clarify, I only have 2 children, Sham is the wonder woman who is mother to 7!!! ... View more