😧 How long for this kind of life do I have? N: I hope you will have another 20 years... at least D: Don't be silly, you know what my question is. What did the people say I will live for? N: Oh.. ok 9-18 months. So based on what they told us, you have 5 months to go. You'd better prove them wrong. D: I believe I have at least 6 times 1 month. N: Isn't it easier to say 6 months? D: I guess so.... LOL Let's see how we have travelled so far.... 4 August 2011 MRI - brain tumour found 8 August 2011 SURGERY 11 August 2011 Confirmed GBM, we were told we had 9-18 months on average. 29 August 2011 - STARTED CHEMO-RADIOTHERAPY 9 November 2011 (3 months) Scan - Unclear, residual from radiotherapy, brain swelling 17 November 2011 - STARTED TEMODAR CYCLE 11 January 2012 (5 months) Scan - good, no regrowth 7 March 2012 (7 months) Scan - discovered the regrowth, we were given: - 2-3 months if he does nothing - 6-9 months depends on chemo and response 10 April 2012 - STARTED CLINICAL TRIAL 10 May 2012 (9 months or 2 months after recurrent) Scan - second tumour found, original tumour site looked better. 6 June 2012 (10 months or 3 months after recurrent) Scan - second tumour had grown bigger, original tumour site appeared to be stable. 29 June 2012 - STARTED AVASTIN 3 August 2012 (12 months or 5 months after recurrent) Scan - second tumour had grown bigger, original tumour site looked good. 10 August 2012 - STARTED AVASTIN + CARBOPLATIN 17 September 2012 (13 months or 6 months after recurrent) Scan - second tumour is now twice the size within 6 weeks, original tumour site is fine. No more chemo. Radiotherapy and surgery aren't an option.
Super Contributor
It looks as though there is hope for several more months of living .Treatment may result in a better than average prognosis . average Some people do better ,some worse . I guess the next scan will tell if your husband is one of the luckier ones . Fingers crossed ,good luck for September 17 .
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Thanks Silly 🙂
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Our fingers are crossed with u and ur husband peanutz for a successful scan and many more months and years of living. I love to hear when somebody outlives their "prognosis", it gives hope for me and I hope it gives others hope too.... Good luck to u both 🙂
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