Blogs - Page 69

Today a subcutaneous pump was put in, to give constant morp/maxalon & clonazepam. 4 seizures today alone. Before the pump was put in, he was holding my hand, then reaching out & flicking the top of my skirt, then picking at a bit of tape on the bed rail- the brain injury is becoming more and more apparent. I decided tonight was the night to write his eulogy. I needed to have a cry, and then be able to go & lay with him and hear him snore. Is it strange that I want to record his snoring.... so I can listen to it in the future.

We have been home from hospital for 9 days now. We are good friends with silverchain now, with regular daily visits as things change. As per discharge details he was being weaned off the dex(steriod) but after waking up to him knowingly peeing everywhere, stating he didn't care- I knew something was up. and that the pressure in the brain had increased dramatically. Then came the nausea, so the last 2 days has been terrible terrible headaches & constant vomiting. So now back on the dex, trying to boast it up to give him a little more quality.... but I doubt it will work for long.

So, my last 2 weeks started the new year with an almighty BANG! Ben had a substantial fall, we think he may have had his first seizure. And he cracked his head on the toilet bowl very hard. Rushed to hospital via ambulance, and MRI found large amounts of fluid on the brain therefore requiring them to insert a VP shunt to drain the fluid to his stomach. Here begins the worst 2 weeks of my rollercoaster ride of caring for someone with a brain tumour. If you have been reading my blog, or following my journey you would know that we have had quite the easy ride so far, considering.

During my treatment I wrote many poem's. I found them very cathartic. This is the first one I wrote MY SILENT BATTLE The battle's begun, in war I'm engaged, To fight off this evil, I've become so enraged, You crept in like a thief and left your mark, While I was alone and asleep in the dark. But you will not win this battle with me, I'll smash you and kill you, just wait and see, You've picked the wrong one to wage this war, When I'm finished with you, you won't re-enter my door, You'll vanish forever and never come back, For never again will I take this track.

I just be diagnosed with stage two bowel cancer and will have a colostomy soon. All so sudden and I don't seem to have any advice or any other help from anyone. I feel so alone and scared. Was told I have bowel cancer on the 7th of January 2014, had scans done on the 8th and was told I need a colostomy on the 9th. Shouldn't there be team meetings to discuss on how to treat me? The worst thing is, my specialist is on holidays for a week from the 10th. Should I get a second opinion?