Blogs - Page 73

Thank you for your messages of love and kindness Thank you for remembering. It has been a hard year,yet getting better. This week was difficult reliving that yearning grief as though it was yesterday. I guess since Sep this year, I have been doing some reliving of Kevin's detrerioration which started Sep 2012. I actually got through his anniversary date very well. The reality hit a couple of days later that I have lived a year without him and lots of things happening without him as will continue to be. Love to you all

Well things were seemingly travelling really well for us until the 12th of August. 3 rounds of PCV chemo down, one to go, and no serious complications. He was very nearly at the end of the 6 month driving ban that resulted from the first single seizure ... just 3 weeks to go. He was looking forward to regaining that freedom and independence more than anything else. Life seemed to be returning to a semblance of normal.

feeling great today. the chemo is starting to wear off, and im feeling ok. might wash and vac the val and take all for a cruise. 🙂

on the 21st of november at 7.53pm by beloved husband passed away from this hideous disease . i slept by his bedside in hospital watching him in excrutiating pain. its so not fair and cruel . i want to scream and cry but it wont come . but he was a hero to us ... he went on drug trials not to really help him but to others and he had a donation box at his funeral to donate to gist alliance ... to all that are going thru this journey with gist tumours if you need to talk please message me xx with love jill xxx

I returned to work this week, after taking almost 8-9 months off. It's only 2 days a week 4 hours a day, but I think for now that's sufficient, especially given I have 4 more cycles of chemo to go. I'm due to start cycle 3 of chemo (on 6 cycles of chemo, 5 days on and 23 days off), and I felt the last lot of chemo made me feel a little more tired. Generally the fatigue has been okay though.

It's all over, the hardest year of my life turning 21, it's meant to be a mild stone and a happy time in your life but sure hasn't been for me . Having open chest surgery, having a tumor removed then finding out it spread and having to have chemo 5 days a week for 6 months wasn't fun at all, but hey the treatment worked, it's all over now, i wont let cancer take the most important time of my life away from me, all i can say is it does get better. Now its time to move on to bigger and better things and enjoy life again 🙂