Hi David  major surgery with bladder removal is my urologist preferred option now, however not a path I want to take. Chemo is only the first choice for muscle invasive bladder cancer, BCG immunotherapy is definitely right way to go for non invasive, it worked 99% for me and my team were so happy that it had worked so well for my ureter. I have no pain and are well and more than happy to do nothing, but will do the chemo, more for my husband  questions!! I never know what to ask  thanks for kind words and good wishes to mum  ... View more

Hi Susana  thanks again for your reply I am not sick in any way, other than I get tired in the afternoon, and a reason I would like not to have anymore treatments however I am high grade with two options chemo or preferred option bladder removal, at this stage I hope the cystoscopy gives the go ahead for chemo 👌🏻 ... View more

Hi David  sounds like your mum and I are on similar journey I was very fortunate as when I first saw gynaecologist I was sent to urologist. I have been on same treatment plan two rounds of 6 week BCG immunotherapy, 12 treatments,  my cancer is only in bladder but I had cancer at edge of right ureter so have had a stent, after my last cystoscopy surgery stent taken out, I am seeing a professor at end of month and will start chemo, but this will all depend on another cystoscopy to see if my bladder ‘is suitable’ as I had cancer in ureter and I still have a tiny tumour on edge of lining I am high grade and the preferred option by doctors is bladder removal, a path I’m not looking at, hopefully  the chemo will be suitable first    thanks for your kind information and good wishes to your mum so good to hear about another female  ... View more

Hi Susana  thank you for your reply, very overwhelming and so much information, more information than I have had. I don’t have many options other than major bladder surgery, which I’m confident I won’t be taking, I am seeing a Professor who had success with chemotherapy trials in a week, and looks like l might be suitable, same procedure as BCG which I had 12 treatments but no longer an option. ... View more

Hi thanks again for some great advice, my husband comes with me every visit, we feel we ask relevant questions, and usually hAve a list, my surgeon draws us pictures which is really good, I simply think I don’t want to know a lot, then I think I should know, I guess as I have only two options and as I am really well my main worry is when or will I get sick  ... View more

Hi thanks so much for your reply and advice, you are always advised to ask questions, sometimes it is just so hard to know the questions to ask. I have asked if I do nothing how long will the progress be; I was told quickly or may be slow.  we are going away at Christmas so major bladder surgery will not be an option this year if I was going that way,. I think we will be going with the chemo which will be six weeks of treatments, problem with that, I have to in for surgery before to even see if I will be suitable,so not much available to me. Do you have a stoma bag as I will have one if I go with surgery. thank you so much  ... View more

Good luck Mike when your BCG immunotherapy starts, the catheter is for so a short time maybe a couple of minutes if that and I do realise it is painful for men, but for the next two hours all pain free , so you have absolutely got this  ... View more

So sorry, I do know how you and your dear sister feel, after my bladder cancer diagnosis in December within two months the same happened to me, I’m convinced people think we are contagious, sometimes you just want a friend  to show some care, we don’t want people feeling sorry for us, I hope life and health are on the up  ... View more