Smiler I was very sorry to read that you still have the pain after surgery I had whipple 9 months ago and still have the pain so i know how much you are suffering,but i am disgusted that the doctor spoke like that to you,my surgeon says that it can happen after that surgery unfortunately,and my oncologist agreed.I got through 13 sessions of chemo,but i developed fluid in the lungs and couldnt finish the chemo was just getting over fatigue had a fall last week and fractured my kneecap am in a zimmerman splint fingers crossed i dont need surgery,I hope pain settles for you, best wishes hopefully in time it improves for you if you have any questions dont hesitate to ask kj ... View more

Margro Well done i am 8 months after whipple you are giving me something to aim for i have 2 cycles of chemotherapy to go am sitting here fatigued so its good to read of youre fight kj ... View more

HI DPC thanks for youre reply great to hear that you're partner is recovering pain free,and the offer of some names to see i am from melbourne i have other conditions that may have contributed to my recovery being as it is,I cant speak highly enough of my surgeon,he has visited me at all hours of the day and night and is very accessible before i left hospital the second time i was told it will take me 6 months to recover,I have an appointment in 3 weeks at which time I am having a ct scan to see whats happening i had chemo today and got some great news i have been very sick with chemo they did C19.9 tumour markers on me and the result was my markers are well in the normal range it is good to communicate with someone who knows what whipple is like,I wish youre partner well in the times ahead,please excuse grammar as i have never communicated on computer before. kj melbourne, ... View more

Hi KittyBee I cant offer any advice unforunately i cant imagine how frustrating it must be for you and you're mum at this time,however keep persisting with the doctors until you feel you are satisfied with the treatment your'e mum receives really feel for you both at this time best wishes kj ... View more

hi gael 58 I am disappointed that you received no replies to you're post and i dont know if you still use the site but i agree totally with you're post,congratulations on you,re effort to raise funds and awareness of this disease kj ... View more

DPC when i had chemo yesterday the dose was reduced by 20%I have also been sick from the chemo,this latest reduction in my chemo makes a total reduction since i started chemo of 45%it was my 11treatment of chemo i have 7 treatments to go,so hang in there on the chemotherapy,my oncologist said it happens the further chemo goes,until they get the right dose for you're body it will get to improve. good luck kj ... View more

Hi Rebecca I also have been told i have 12to 18 months to live,but i believe i have too much to live for i have a loving wife,daughter and grand children,i also have great mates supporting us I havent told anyone out of the family,about the oncologists diagnosis as i dont want them to worry to much,if and when the time comes i will inform them,I dont believe the expectancy they have given me,we are all very different inside i have told the oncologist i am going to live much longer so i am very determined,i have been given bad news before and i defied the odds,so keep doing what ever needs t0o be done to survive regards kj ... View more

dianne 52 you are right about too few responses I joined this site for more information about my surgery and cancer,who better to ask questions about what is happening than to someone who has or is going through the same as you i would gladly reply to any questions asked of me about this surgery and cancer I realise a lot are going through this difficult time in private and dont want to contribute I also respect that kj ... View more

HI DPC thanks for youre reply great to hear that you're partner is recovering pain free,and the offer of some names to see i am from melbourne i have other conditions that may have contributed to my recovery being as it is,I cant speak highly enough of my surgeon,he has visited me at all hours of the day and night and is very accessible before i left hospital the second time i was told it will take me 6 months to recover,I have an appointment in 3 weeks at which time I am having a ct scan to see whats happening i had chemo today and got some great news i have been very sick with chemo they did C19.9 tumour markers on me and the result was my markers are well in the normal range it is good to communicate with someone who knows what whipple is like,I wish you and youre partner well in the times ahead,please excuse grammar as i have never communicated on computer before. kj melbourne,i had complications after surgery and i can't speak ... View more