February 2012
Just be there for her, and respect her decision.
My wife after 2 yrs of fortnightly cycles of folfox then irrotecan, was becoming exhausted, when the 2 regimes started to have no effect on her cancer, she was offered a last resort, a chemo that had been around since the 1940s, she decided not to carry on with the treatment.
The chemo was interfering with her thought process to such an extent that she had trouble focusing on the things she loved doing, mainly her writing, she was becoming too tired to go for a walk, or do her gardening They stopped the chemo because it wasnt working, and she decided she did not want any more.
She knew that as the cancer was spreading thing were not going to get any better, and if you are in constant despair and increasing discomfort, life begins to loose its value. People should not have to suffer, a peaceful passing is better than more pain with very little hope of recovery.
It is sad for everybody, not the least yourself who has cared for her over the time of her illness.
god bless
wombat4
wombat4
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February 2012
It is very difficult to see a loved one go through all of this. Try not to let it get you down, there are many many more in a similar situation. Live as normal life as is possible. Nobody asks to be put in this situation, we just find ourselves in it one day.
2yrs ago my wife was given 4 weeks, so on that prognosis, your husband should have a few more years yet.
Take care
wombat4
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February 2012
The irony struck me that there are some people in the world, mainly some ladies, who would give their eye teeth to be able to be drip feed food for the purpose of shedding some kilos.Yet in a situation that you are in, the same practice has completely different connotations.
You will soon get sick of eating soups, try counting how many varieties you can get through, and let us know which one is your favourite.
Good luck for the coming days and weeks Nat
wombat4
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February 2012
Hi Anere,
When a loved one in a family gets dx with cancer, the whole family is touched by it and suffers, it is heartbreaking, it is there when you wake up, stays with you all day and enters your dreams.My heart goes out to you as you are a young family with young children.
When my wife was dx, our children were adults taking care of themselves, making their own lives. It was difficult but at least my wife and I only had each other to care for and look after.
With the chemo will come fatigue, and maybe more mood swings, this insidious disease takes an enormous toll on all involved.
You are doing very well in trying to understand, you will never regret doing everything you can for him.
Talk to your husband about any questions you may have for the oncologist the days before the visit, write them down and take the notebook with you, ask the questions write down the answers.Write down what they are telling you, because while you are focusing on one thing you can forget what they has been telling you about something else
Get the handouts on the type of chemo, read the potential side effects and put in place systems to minimise them should they appear, remember not everybody gets all or many of the side effects.
I wish you all the best
wombat4
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February 2012
My wife of 40yrs was dx with colorectal primary with secondaries in her liver.
As a carer it is not easy. My wife used to say, it was easier for her because she was in this place, and it was dfficult for me as I was outside looking in.
I gave up my work to look after her, it was very important to me that she got the best care, that we got to all the appointments on time, and we did everything we could.
After the op on the primary, she had chemo every 2 weeks, 48 cycles in all.I was with her all the time.
She passed away 21dec. You just have to be there for them and do whatever you can.When I look back now, I know that I did whatever I could, there is nothing that I regret not doing. We used to sit down in the afternoon for an hour for 2 yrs, I used to gently rub a moisturiser into her feet to ward of the chemo side effect of dry skin.
Just be there for them, you will not regret it.
wombat4
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February 2012
Well done, to be a cancer survivor is indeed a good place to be.
Enjoy.
wombat4
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February 2012
Well done, to be a cancer survivor is indeed a good place to be.
Enjoy.
wombat4
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February 2012
What fantastic news daniel,embrace it, enjoy it, revel in it, as you know it could have turned out the other way.
You have woken up from the nightmare and yes, it was only a nightmare, things can now get back to normal.
Go out and enjoy your life daniel, you deserve to.
wombat4
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February 2012
It would be a good idea to go and she your Dr. Good news about the 2 year remission. The on going sickness could be just a bad patch he is going through with general health at the moment or allergies.
But it is better to catch on to it sooner rather than later.I know us carers are on edge looking out all the time for any changes happening in our loved ones health and general condition.
My wife used to say that it was ok for her as she was in this place, it was more difficult for me as I was outside it, looking in and worrying.
Good luck
wombat4
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February 2012
Hi jane marie,
My wife had her CEA up around 1900, after a few rounds of folfox they were down to 8, and stayed there for a couple of months, so although the high numbers are worrying, our oncologist told us that the CEA is only a part of what they look at.
keep strong
wombat4
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