Saw Dipti (hematologist) today 3 weeks since last visit when she arranged urgent bloods - she then went away for 3 weeks. Upshot platelets are low as are lymphocytes. Dipti had ordered a PET scan at the end of July when I finished chemo and even though she had told Canberra Hospital 3 weeks ago that it was urgent as it was a possible recurrence I have still not heard from Canberra Hospital.   So now have an appointment for the PET scan at Liverpool hospital on 1st November. Also now have an appointment with a rheumatologist in Randwick as there are no appointments here until March 2017!   The worst part of the day was Dipti has said I am symptomatic (pain, even though I am on Targin 30/15, night sweats, low pathology and exhaustion) of a recurrence and as it has only been 3 months since I finished chemo. She has also ordered Full body CT - That I can get done here LOL. It is getting a bit much and very, very hard to stay positive ... View more

Hi I finished RChop 21 (6 cycles) then 2 extra infusions of Retuxamab - during that time I had 5 hospital stays with neutropenia -huge lots of antibiotics and blood transfusions - after being diagnosed with chemo induced arthritis a couple of weeks ago I have noticed my teeth are a spotty white cracked and breaking. Has anybody had problems with their teeth after chemo? I had a Whipple's Procedure in December for incorrectly diagnosed pancreatic cancer - when they did the pathology on the half of the pancrease that they removed that it was lymphoma (if you can say thank heavens about cancer Thank Heavens). Anyway long story short has anybody had any problems with their teeth and is there anymore after effects that I should expect (said very much tongue in cheek but.......). Please stay healthy and happy everybody ☺ ... View more

I had the first 3 monthly Specialist appointment after finishing chemo for pancreatic lymphoma today. White blood count was low urgent bloods arranged immediately, the PET scan should have been done shortly after cessation of chemo which hasn't happened because of a backlog at Canberra hospital. Specialist has now said I need to go to Liverpool to have the PET scan. The results of the urgent blood tests show a raised Alk Phos - what with having to go to Sydney to see a Rheumatologist for the chemo induced arthritis, which is of concern to the oncologist, is now worrying me. Not sure if I have reason to worry or not - is this the remainder of life after cancer? ... View more