June 2019
The Prostate Cancer Foundation of Australia (PCFA) are pleased to invite you to an Implementation Forum in Brisbane on July 20th - "Changing the Face of Prostate Cancer Survivorship in Australia".
This forum has been organised by the NHMRC Centre of Research Excellence for Prostate Cancer Survivorship in partnership with PCFA and the Australian and New Zealand Urogenital and Prostate Cancer Trials Group (ANZUP).
Date: July 20th
Where: Hilton Hotel, Brisbane (190 Elizabeth St.)
Time: 9am-4pm
All are welcome to attend, with general registration set at $80. For those living with prostate cancer and their partner/carer, registration is free.
You will have the opportunity to participate in a forum for advancing the implementation of current and emerging evidence-based survivorship care provision in Australia.
PCFA extend a particular welcome to Partners / Carers of Men living with Prostate Cancer with a special consumer forum scheduled to discuss unmet needs, issues around caring and the supportive role of technology.
Register online here.
You can view the following online:
Flyer
Programme
Speaker bios
... View more
June 2019
Breast Cancer Trials will be holding a research Q&A 'Ask the Experts' event in Adelaide on July 24th.
The event will be moderated by Mia Freedman and will also be broadcast live on Facebook.
The Q&A will feature a panel of breast cancer experts and trial participants to discuss and answer questions about current breast cancer research and clinical trials, research trends and developments, and what we can expect in breast cancer research in the future.
The experts will be:
A/Prof Prue Francis
Ms. Leslie Gilham
Professor Sunil Lakhani
Dr. Stuart McIntosh
A/Prof Nicholas Wilcken
Dr. Nicholas Zdenkowski
Date: July 24th
Time: 6-7:30pm
The event is free but you must register to secure your seat - you can also submit questions and topics for the panel during your registration.
You can register for this event here.
... View more
June 2019
BCNA are hosting a breast cancer survivorship conference in Adelaide over the last weekend in July and invite everyone to join them to learn about the latest in the treatment of breast cancer and living well after a breast cancer diagnosis.
Dates: 27-28th July.
Registration itself is free!
Saturday will see two sessions run concurrently:
- for people diagnosed with early breast cancer
- for people living with metastatic (secondary, advanced, stage 4) breast cancer
Sunday will focus on body image and breast reconstruction.
You can view further details about the program here.
Registration is now open - note this is free, register here.
... View more
June 2019
Hi @SkySkyBaby,
If you're worried, you should certainly visit your doctor and ask them to check, or get a referral to a skin specialist.
This guide may helpful to you as well: https://www.cancer.org.au/preventing-cancer/sun-protection/check-for-signs-of-skin-cancer.html
Let us know how you get on
-Kate
Online Community Manager
... View more
June 2019
2 Kudos
Morning @lornamacintyre and welcome to our forums!
Sorry to hear of your diagnosis, I am glad you found us though, you are most certainly not alone
I've just sent you a welcome email, I mentioned our Telephone Support Groups in that but I am also going to suggest you give 13 11 20 a call and just have a chat with one of the cancer nurses. There may be things such as counselling programs available to you in your area that I believe would be worth investigating.
There are most definitely others here living with Non-Hodgkin Lymphoma in this community.
In the meantime, I am going to post some links below to some resources that may interest you to read or listen to:
Understanding Non-Hodgkin Lymphoma (pdf book)
Coping with a cancer diagnosis (podcast)
Managing cancer fatigue (podcast)
Managing fear (podcast)
There's 2 seasons of the podcasts available if you're interested, you can find all of them here. They are hosted by the amazing Julie McCrossin, who went through her own cancer experience. They are actually recording the new season right now here in the office so that should be available in the coming months
Sending hugs!
-Kate
Online Community Manager
... View more
June 2019
1 Kudo
Hi @erron,
Sorry to hear of your cousin's diagnosis.
There's some information here, over on the knowledgebase maintained by Rare Cancers Australia about MPNST with some information about prognosis that you may find useful. May need to scroll down once or twice to get to the information I've mentioned.
Has anyone here had any experience with MPNST or soft tissue sarcoma's that could perhaps address @erron's questions?
Cheers,
Kate
Online Community Manager
... View more
June 2019
Morning @CDee,
Sorry to hear what is happening with your father, how has he been the past few weeks? And how have you been?
Just bumping this up, so hopefully other people here will see it and be able to contribute!
Hoping all is as well as it can be right now
-Kate
Cancer Council Online Community Manager
... View more
June 2019
Hi @DSR202,
Just touching base and wondering how your PET scan went and how you're doing with the chemo?
Have you heard about our Cancer Connect program here at Cancer Council? It's a great little program where you can chat over the phone with trained volunteers who have had the same or similar cancer or treatment you are having. We have a number of volunteers who have had bladder cancer, even one with a neobladder, that might be great for you to have a chat to. If you'd be interested, send an email to onlinecommunity@nswcc.org.au with your contact details and I'll have someone from the team contact you
Cheers,
Kate
Cancer Council Online Community Manager
... View more
June 2019
Hi @CAP,
I hope your husband is doing better with the mucositis.
I can see you've found the big thread about head and neck cancer's in general, which has the best advice in there. Let me know if you need any help with the site though!
Cheers,
Kate
Cancer Council Online Community Manager
... View more
