@Exhusband021404 , a parents death will change a child, especially if they're young. Perhaps you could arrange some counselling for your kids.  It sounds like they need to get some coping mechanisms & to just unload all their pain.  I hope you all can find some peace soon. Take care of yourself      ... View more

Hi @Jova ,   I'm so sorry for your loss.   At least, she's at peace now.  Take care of yourself.  💙🌻   ... View more

😆 It doesn't really hurt too much if you just have 1 or 2 coffees, but they do say to reduce the intake.  I think if it makes you happy, keep it up.  I used to drink coffee heaps throughout the day, but I'm down to having one with breakfast & one with lunch.   Have a good day 😊 ... View more

Hi @Paul71 ,   Welcome to the forum 🙂. I also have kidney cancer; I was diagnosed terminal in Aug 2012.  I had my right kidney & adrenal gland removed, but I had 2 other  remaining lesions, one in my left butt cheek & one right against my spine in the psoas muscle.  That one was inoperable because of how close it was to the spine.  Their reasoning - I'd lose the use of the left leg, & I was already terminal = not worth the surgery.  Anyway, to cut a very long story short  - after being on 4 other treatments & my body becoming resistant to them, I  was put on immunotherapy.   After 3 months was showing no sign of improvement with it, so I came off that & was put on Cabozanitib,  which I've been on ever since.  So unfortunately,  the immunotherapy didn't work for me.   But I've heard it does work well for alot of people.   One of the main side effects is that it can increase the effects of any auto immune disease you have, eg; arthritis, but I'm sure the onc would have already explained this all to you.   You're young to have kidney cancer,  so was I. I was 46 when I was diagnosed.   But being young can help you alot with this cancer.  It puts you in better stead to recover from any side effects of treatment.  Although, I'm a bit of a mystery to them because I never follow any of their "rules" for kidney cancer.   Anyway,  please feel free to ask me any questions & I'll answer as best I can. My advice - drink plenty of water to flush your remaining kidney  - seek counselling when you need it - keep active as much as you can - eat well, cut down or eliminate alcohol & coffee - don't be afraid to question the doctors,  they're there to make sure you understand everything.  - keep a good attitude.   Attitude is everything if you want to stay alive.   I wish you all the best with your upcoming treatment  Paul71.   Cheers Budgie       ... View more

Hi @Paul71 , It's normal to be scared, but try not to worry too much as stress can hinder your recovery from treatment.   You never know, you may not suffer many if any side effects, but you have a strong will to live, & that helps a lot in keeping you alive.  Keep the attitude.  All the best with your treatment. 🙂   Budgie       ... View more

I'm very sorry to hear that @Exhusband021404 .   You & your children have my deepest condolences.  💙💐 Budgie ... View more

Eating well in a hospital?  Did you smuggle your own food in with you?  😉 The general anaesthetic will keep you drowsy for a day or two, so I m glad you're sleeping well.   Be kind to yourself @mensana , & take each day as it comes.   Cheers   ... View more

Oh gosh, I'm really sorry.   Hopefully then, the chemo will do some good.    It makes me so angry that the GP who kept telling you there was nothing wrong, is still practising!  There are too many doctors out there that just don't listen to the patients.   I'm sorry for my rant - I wish the outcome was better for you. ... View more

I hope you had a good flight down to Adelaide.   Good luck for tomorrow @mensana .  I'll be thinking of you & hope it all goes smoothly.     When you're lying in your bed, after the op, use your imagination & picture your body healing itself.   I know it sounds a bit crazy, but it actually does work, & hey, what do you have to loose?    Back in 2015, I had blood poisoning from gall stones that were stuck in my bile duct.  I  had my gall bladder & offending stones removed, but after the op I was still quite ill.  I was lying awake in my hospital bed in the middle of the night when I started using my imagination to picture my antibodies fighting off the infection.  After a couple of times doing this it was like a switch was flipped - I felt the moment when my body started to beat the infection & I knew I was going to get better then.  I know it sounds stupid, but it does work.  Your mind is a very powerful thing.  Don't doubt it.   All the very best.     ... View more

I'm glad the surgery's going ahead quickly for you now @mensana , & I hope everything goes smoothly for you.   Try not to worry about what you don't get done before you go.  There's no point in worrying about what you can't control, & sometimes there's just never enough time to get everything done.   I wish you all the best. ... View more