Hi Patches, I am sorry to hear about your journey, it sounds like it's filled with rough decisions. It's clear to see that you want the best for him while also keeping inline with his goals. I provided home care to my mother while she was...ill but then again I did have help from my sisters. Sometimes palliative care is the best option but it all depends on who can assist you during the nights, who can physically help you as well. It's alot to consider as you will be also responsible for providing medication as well such as pain killers and whatever else. I had to make these decisions, I am not trying to scare you away from home care but just letting you know, what you might encounter and what to expect as well. You can only do what's best for them and sometimes sadly it doesn't always work with their desires due too many reasons. But you can visit them everyday, knowing they have excellent nurses looking after them 24/7 and you can even make the room more homey too, with home blankets or items. This is not an easy subject to touch but you are clearly doing your best and that is all anyone can ask from someone. Please tell me, how is everything going?
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