Hi Steelfingers I am also going through the same issues been on Oxycotin for months. Have asked to be referred to a pain specialist Dr as I don’t want to be stuck on opioids. Hoping this new option will provide better pain management and reduce dependency but still have benefits for me. i was referred through my palative cair nurse as often they have a better understanding. All the very best in your search and i pray for an improved outcome for ou in your journey. Kind Regards 👍👍 Peter👍👍 ... View more

Latest Update from recent PET Scan Well the latest results came back as some static and some reduction in cancer locations after 4 rounds of FLOT However I was surprised that two previous areas of cancer had increased in size obviously this sucker is determined to give its best but then again so am I. Currently the concern is 2 x new cancers identified in the spinal canal at T9 & T11 and have been put on anti inflammatory pills and steroids for the first time in months with one dose this morning having a marked improvement in lower back pain for the first time, I’m so relieved. Next step is down to Perth for radiation therapy to hopefully knock these new invaders on the head and improve my quality of life. My palative cair nurse has been amazing and I could not have reached out at a more important time, and living remotely 1600ks away from my specialists and treatment locations her input had been invaluable. So my plan moving forward is to attack back and fight like hell, continue to pray for strength and wisdom set new goals and then kick them over, this kids not done yet. ❗️❗️❗️ ... View more

Hi Madsnhunt i was diagnosed with S1 esophageal cancer in late 2012 in early 2012 had a radiation therapy chemo and then a huge operation that ha me off work for 3.5 months Cancer free in remission till June 2019 ct Shan then showed cancer to top of right lung following this a Pet Scan showed cancer had spread to  6 other body parts Treatment was chemo only as body parts that had previous radiation treatment could no longer get further radiation I am now waiting on Pet Scan 27/1 to see how this last lot of treatment went ? ?  im 61 have a 20!year old son and a 22 year old daughter married 22 years to a fabulous woman i to have thought your same thoughts recently and as my remission periods are decreasing because of the spread of the cancer I did ask my oncologist how long do you think I have go, his answer was expected how long is a piece of string, everyone responds differently to treatment so I then asked at the start of my 3 round of chemo if I did not continue with chemo how long do you think I would have, his response was maybe 2 months  The 3rd lot of chemo had me in bed with severe  fatigue but this last round was not that bad I think quality of life is so very important over quantity when quality of life is deminished through ongoing harsh draining treatment  to other limited positive outcomes then you like many ask the same question  For me at the moment I’m going to fight like hell stay as positive as I can, set goals and kick as many as I can, talk to family and supportive friends and service providers take one day at a time and always take time to smell the roses and live the life I/we have as best as I possibly can. Im sure my body and my heart will tell me when Enough is enough and as long as I’m pain free that will be my primary objective and concern. Sorry for the ramble but it’s important to share thoughts and feelings no matter how hard Talk  to your family and Dr and express your wishes and desires but make informed decisions that you are happy with, its not going to be easy but I’m sure a BUTRON will be lifted once you have made a decision I wish you all the very best for the future and my thoughts and prayers go out to you stay strong be strong stay safe and remember your loved emencley. Kind Regards & Best Wishes Always For Today and Every Day Big hugs if that’s appropriate Peter    ... View more

To Lampwork 54 Thank you for your kind reply and for your thoughts and experiences much appreciated. I have just finished my last round of FLOT treatment however I asked if the dosage could be reduced from 100 % to 75 % which has made a big difference currently in fatigue management  and have returned home from Perth, always so nice to get back home in the same surroundings. Next plan is to plan a return trip to Perth in 2/3 weeks to have a another PET scan to see the outcome/ results, I’ll then make informed decisions based on the most up to date info. In my heart I’m not ready to “give up” to “it” and toss in the towel, as there is still much I need and want to do. To spend valued time with family and friends and still work to provide and live each day as best as I can is/ are still my goals at the moment. So I’m up and kicking again, “Thank You” again for sharing a part of your journey with me, as the many people who are going through same or similar experiences themselves or on a loved ones reflection are also very heart warming, inspiring and uplifting. Rich Blessings Peter 🌺🌺🌺   ... View more

Hi There Sorry just found your reply post you described some very positive results which is good to hear   The journey  is often like a roller coaster ride but with good Drs and support staff and the love of family and friends this makes such a big difference. I have just finished round 3 of 4 rounds of FLOT treatment which has kicked me on my arse, with severe fatigue bit one day at a time agh, hardest thing is putting on weight pre op 02/12 117 is now 71 but that’s ok just buy smaller clothes ha ha hav   My next Treatment 06/01 will be followed with a PET scan apprehensive about results but still setting goals kicking many although the posts do move but ALWAYS positive and Determined.   Thinking of you and yours and prayers as for me these have helped but it never hurts to try if thats an avenue for you go for it   Rich Blessing Always 🆗🌺🌺🌺       ... View more

Hi moving on Just found this old post it brought back many a memory just touching base with you 2 c how You Are Going I had an X-ray 3 weeks ago Dr very happy with results next ct scan in early October so in remission I’m relieved at that at times still think about what if but I remain focused more on the now than the then Keep your goals remain focused stay strong love those u love tell them show them. Live your dreams never stop learning and growing live for every good day knowing that you will have the odd what if day but above all know that you are important you matter, every day counts and we who all go through this journey it’s how we as individuals be it a husband a wife or a partner grow and develop is what makes us the person we are All the Very Best 🆗 ... View more

Bugger I thought I had sent a reply weeks alas not sent sorry. i was diagnosed S4 in June 2019 had 3 rounds of chemo an 2 round of radiation therapy finished Dec 2019 last two CT scans have come back clear, so I’m pleased about that. Stay positive stay focused  set challenges and kick goals as even the small ones matter eat well be as STRONG as you can and love family and friends even more & above ALL Never Give Up 🆗👍👍👍 Wishing you all the very best for the future  ... View more

HI Tenforever   Its Ok to not be ok when you have the strength and power and wisdom to reach out and say I’m not ok I  got  S1 esophageal cancer in 2012 radiation and chemo then huge opp lost 40 kgs made it through 7 years then got  esophageal cancer S4  had radiation therapy and chemo  that’s all they can offer this time round with 20% survival in 5 years if I’m lucky Yes I have been very similar places as you I have cried felt sorry for myself felt lost regret felt depressed felt isolated  felt fear but also joy compassion optimism  hope and love and prayers from so many family and friends we  don’t often know where our  journey will take us how we will cope but I DO know we must often fight with all out might and passion  set goals kick goals even small ones and NEVER give up  Take each and every day 1 day at a time and You WILL come through this I’m SURE of that stay strong be strong stay focused  Tell those around you that care for you and love and support you how much they mean to you show love and accept love as YOU have so much to offer to so many and ALWAYS remember you are appreciated cherished adored respected and held in high esteem by many Dwell on the positives reject the negatives and YOU will achieve MUCH I’m SURE of that and rich blessings on your journey as you have SO Much To Offer Kind Regards 🆗       ... View more

Hi sch Thank For your message, much appreciated I finished all treatment radiation therapy and chemo in December & so pleased with that “chemo” really  sux Eating anything and everything putting on weight, have 70% energy back still fatigued at time ms but doing ok Doing some weight training at home every 2nd day so swing small improvements there Have catch up with Dr tomorrow arvo so hope to be in a better position to work more remotely  Many Thanks again for your txt thoughts and wishes  Kind Regards Peter ... View more