Bushwalker   How often did you had your immunotherapy sounds like it is more often then me.  I have one every 3 months my next one is 14th May.  When I had my final petscan it highlighted in an area in my chest which the doctor said he didnt think it would be another lymphoma but like a chest infection .  Like  you I had a cough which hurt everytime.  Went to doctors got a CT scan done on the Friday but by the following Tuesday if should nothing highlighted they couldnt see anything.  I still have a cough by only occasionally.   Bushwalker did you have lymphoma. ... View more

Colin81   Thats fine with me that your answer questions about Lymphoma I am glad there is some else like me on this website.   Hope everything OK with you and your help generally.     ... View more

thanks Colin I am glad you have answered Andrea, I too have had lymphoma but now in remission.  If you need any other advice I am here for you as well.  The points covered about having a support person is very important.  I do agree with you Andrea about getting a second opinion if you are not happy.   Yes with lymphoma you dont often get symptoms but please try not to worry.   ... View more

Lindsay this friend I was talking about before has called around to my place last night we spoke at the door she enquired whether I was Ok going out to get groceries as she rang the other day as well she is also concerned that I have not contacted her and wants to keep in touch. I did not give her an answer to this, anyway with this self isolation all I have wanted to do is sleep ... View more

Hi Mini-meme   Can I just say to you do not go into Google and ask for any medical advice that only worries you and often the advice is not true.  Only go onto site Cancer Council sites of actual medical websites.   At the beginning of my journey with lymphoma I went into Google who mentioned that my lymphoma deadly and there is no hope.  That automatically scared me and made my anxiety levels go up which doesnt help.   I later learnt there are marvellous cures for all cancers now as there are wonderful medical people finding out new things all the time.  Please keep positive as I strongly believe keeping the mind positive will make your whole body positive because this has been proven for my journey.     ... View more

Yes Iyana I am on rixtuximab injection every three months.  My 1st one was on 14th February.  Some days I get rather tired but that is one of the side effects.  My next one is 14th May.  I did have follicular lymphoma.   Iyana I just take each day as it comes and if I think about anything and it is not urgent I write it down to discuss with my cancer doctor next time I see him, or I ring him if it is urgent.  This treatment goes for 2 years.     ... View more

Hi Iyana271 So sorry to hear about your diagnosis.  You have friends here please keep us informed your progress.   There is some of us here that have gone thru some of the treatment that you are likely to go thru although we might not have had the same cancer they do have same sort to treatment.  For example I have gone thru chemotherapy and now in remission but are going thru immunotherapy so if there is any questions you would like to ask please do.  We all have your back here and will help as much as we can.   Good Luck we send our prayers to you.       ... View more

Hi Nicola 1   Thanks so much for your comments, I feel that this cancer I used to have has changed my life completely and it has put things in perspective.  As my wonderful cancer doctor has said to be that any type of cancer does this to you he says to me to put myself first and keep moving forward.  I feel after your comments I cannot afford to carry anyone in my life that doesnt support me.  I must keep moving to grow and learn things in life to make me a better person and feel I have done this thru my cancer treatment.  Thank you again Nicola and i wish you the best for the future and prayers to your Dad. ... View more

Dear Katkit   I have not spoken to my friend since that last endeavour with her.     I feel after having cancer and the high and lows of this I really dont like confrontation with people any more and now I tend to just walk away from any upset.  This friend comes from a big family who are very supportive of each other and have always been there for each other. She admits to me she cant imagine what it is like being me being alone with no family system.  So I think when I am with her she makes me feel inferior this is why I have kept my distance, and personally feel disappointment and let down in this relationship with her.   I am  now going out more socially and now meet more positive people in my life that make me feel more relaxed and appeciated.     ... View more