November 2009
Hey Linda
Glad you enjoyed bunbury, is not such a bad place :).
I tried to have a flutter on Daffodil but put the wrong number and backed something completely different. lol Nm!!
Are you having a bet?
Julie
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November 2009
Hiya Linda
Actually it just outlines to me how much things have changed. Although even today with the amount of treatment that i had i would still have to travel, although overnight accommodation may be on offer, depending on times etc...
Yes, i feel the same if someone is not travelling so well which reminds me how people that dont have cancer will find it with me. :)
It is incredibly hard to be away from family and friends, very challenging indeed. As with all challenges in life, once we get through them we grow!
Charlie's rocked back then and i believe they still do. So to all those that work there kudos.
Take care and talk soon maybe.
Julie
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October 2009
Was 21 years ago now. I had just given birth to my beautiful son and 3 weeks after he was born i found "the lump". The lump that was to turn my life upside down for quite some time and also those around me, friends and family.
At first i decided "the lump" was mastitus, so i promptly made an appointment to see a gp. I couldnt get in to see my normal gp so i made an appointment with one i had seen before but didnt like. Oh well, i just need some antibiotics or something so that didnt matter! Little did i know! He first prescribed penicillin and i was to go back 3 days later if there was no change. So duely made an appointment to see him again after 3 days. Then i had to go for ultrasound treatment on "the lump" and back again in 3 days if that didnt make a diff. Back to him i go! He then calls in a more senior doctor (who happened to be a friend of the family) and asked him what he thought. His reply was "blocked milk duct most likely". Luckily the gp i was seeing didnt buy that one and stated that he would like to do a biopsy to just see if it was anything more sinister or not. In the mean time i go back to my normal gp to have my check up after having my son and she says the same re blocked milk duct. I should explain that "the lump" was under my arm in breast tissue, although not in the breast. So i then have a biopsy performed and go to get stitches out and am told they cant tell from that one what is happening so we need to do another biopsy. I asked if the frozen section had defrosted on the way and if that was why they couldnt tell? haha I also ask for second biopsy to be delayed a bit as i was meant to go to country week that w/e and no way i could have gone if i had undergone a biopsy on the friday, "no"!!!!! was the answer to that one. So i go have the second biopsy and over hear the nurse afterwards asking my mother if anyone was going to go to the doctors with me to get my results. Hmmmm, this cant be good i think.
The diagnosis and my world drops out from underneath me. I am told "the lump" is amelanotic melanoma and you could have a month to live or X amount of years. Now what i want you to do is go away and live your life like you only have a month to live. My gp also asked me to make an appointment in 3 days time to go back and see him as he said i wouldnt remember much of what he was telling me. (How lucky am i to have such a great gp?!?!?) Now i was a single parent and that meant going to a court of law and deciding legally who was going to raise my son if i wasnt around. I should say here that is something i never could bring myself to do. Who was going to raise my baby the way i wanted him raised?? No one i could think of and luckily i was able to stick around to do it. At this point in time i moved back in with my parents and then life took on a new level of travelling to perth for an appointment which i may need to stay for 1.5 days for and just be prepared to stay overnight.
So we get to the clinic in perth and i dutifully sit down and wait and wait and wait. No one told me we were supposed to hand our little pink slip in. lol So two hours later i politely inquired as to how much longer i might expect to wait, to have the most lovely receptionist exclaim that i should have handed said pink slip in and she would see what she could do. I get to see the oncologist who examined my arm and promptly went to get another oncologist to examine said arm. The second oncologist leaves and he is replaced by another and they all confer and decide that none of them can find the primary, so they will just deal with the secondaries. I get the same story from them as from my gp. Back to the receptionist and am told i need to come back tomorrow, so we ring a friend and stay overnight with her and head back in the morning. On arrival i am told i need to go to G block as i have been admitted. I am liked ohhhhhhhhhh my!! We have only bought enough clothing and supplies for 1 night and they are proposing that i be in hospital for 2 weeks!! Crickeys!!
Each day i am sent for tests that have already been done. The nursing staff were just fantastic and used to fight over who was going to pick up my son when he was awake. 🙂 It got to the point where we needed to go home just for one night to get some things sorted. I was told i ran the risk of losing my bed, but it was a risk i had to take. So we did a quick trip back to Bunbury and back up the following day a lot more prepared.
So after seeing 7 doctors in two days i am pretty much reeling, although prepared for the big op that i was to have. I had most of my lymph glands removed from my right arm pit. My aim after that op was to be able to move the arm up above my head again. The next day after the op i couldnt pick up a pen in that hand neverlone move the arm and walking was agony. The physio came round to get me out of bed to walk down the hallway. Walking towards me was my sadistic professor type surgeon who had the sickest sense of humour of anyone i know. He saw me coming in the opposite direction and lifted his arm and waved gaily at me. lol Not sure i laughed at the time but certainly later on i did. Although i did manage to exact a bit of revenge against him. I returned to see him for my check up and he inquired as to whether i was having problems and i replied "yes, i am umpiring basketball as i cant play and am having immense problems doing a jump ball" haha He just looked at me and told me to go home!!
I repair enough to be sent home and start off with weekly visits back to the hospital for checks which then go into fortnightly ones and so on and so forth until at the 3 year mark i was told i didnt need to go back. An amazing journey was had with good and bad lessons learnt. More good than bad though and like everyone else here i have been through the mill and myriad of emotions and everything else that being told you have "cancer" encompasses.
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October 2009
Hey Jodielee
I am from Bunbury ... amazing that here at Milford as how small the world is. I was talking to a friend the other night and she actually knows one of the guys from here, oh and one of the ladies too!!
Julie
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October 2009
Hiya Graham
Am struggling to find the right words and yet i want to say something to you. I just hope that you find some peace and strength, which i am sure you will. Say all the things you need to say and may each step that you take be meaningful.
I see there is a horse racing in the cup called "Daffodil", i wonder if it will end up a favourite if everyone with cancer or touched by cancer backs it.
I think i am with samex ... i would gaze at the stars too.
Julie
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October 2009
Hiya Mrs Elton
I have thought some on this one.
Its different i think being a carer to a patient. People often perceive the patient as the person needing all the help and tend to forget about the carers perhaps?
Friends and family are not always going to live up to our expectations and sometimes it just takes us to reach out and actually say what we need. Even though at times it is blatantly obvious to us what we are needing, other people i feel dont see it so clearly.
Julie
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October 2009
Hey Willow :)
Yeah i had a great nights sleep thanks. Feeling much better about everything. I learnt a long time ago that i dont need to think about anything if i am not sleeping and i can pretty much achieve that.
Feeling heaps better about things, nothing has changed in reality .. i am still the same and doing the same treatment and do it i will and get it over and done with. Cant wait for that day!!
Life will never be the same and as soon as you accept that the better off you will be. 🙂 I think for me, once i did accept that things got easier. This time round i have decided that as much as possible i am not going to sweat about things that are not actually happening and if and when they do happen then i will sweat!! Not always easy to do, granted, it is possible though.
hope you are doing ok? I try and look on some of this as my current job. Tis my job to have personal responsibility for the things i can be responsible for. Tis my job to keep my head in the right direction and not on negative thoughts. All sorts of things really, albeit smallish i guess in reality and yet at this point in time i find it helps.
hugsss again just cos i can and i happen to like them too .... heh
Julie
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October 2009
Hiya MrsElton
I withdraw also when things get a bit tough. I just regroup and re energise to get back into whatever is happening at the time. Yes, for me its survival mechanism. I find the beach very therapeutic when i am feeling like withdrawing.
take care
Julie
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October 2009
Hiya Jodielee
Thanks and am glad to hear your husband will be coming to stay with you for some time. I am at Milroy, which is the other cancer council accommodation place in perth. 🙂 Its great!!! As is crawford lodge, i have stayed there a couple of times also.
I am betting you are just missing those grandies heaps. Will be very special when you do get to see them again.
I was fortunate enough to get out of hospital just in time to celebrate my son's 21st birthday with him, so i consider myself to be quite fortunate.
Thanks for the comment and i am glad to read that your radiotherapy is going great also.
Julie
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