I forgot to add the incredibly dry skin side effect. ... View more

I forgot to add the incredibly dry skin side effect. ... View more

Hi bigmumma I was on it for 4 doses ... not absolutely sure what my dosage rate was but I was told it was the highest one i could have. I didnt have to pay as it was part of my treatment. You could ask your oncologist to see if it could be part of a trial or if they might donate some to you? I had the cetux as a combination with my radiotherapy. It caused me all sorts of problems with skin burning etc... It is all healed up now though. lol re eyelashes they were absolutely painful, although, i got lots of comments on how gorgeous they were. They all dropped off and i am glad as they hit my glasses and would get tangled at times when i blinked. Used to have to use a finger to get my eye open at times! ... View more

Hi Skin rash is definitely one of the side effects. Combined with sore muscles ... combined with ... fatigue. That was while i was having the cetux. Afterwards my eyelashes grew really long and all my hair "everywhere" doubled / tripled. Still having some muscle soreness but apart from that the hair has gone back to normalish proportions. Dont stress re the hair and eyelashes because i am apparently the only person in west aus that has had that reaction. They are apparently getting great results with this drug and as far as a cancer drug goes it is prolly not as invasive as some are. Hope that helps you ... oh you might have a problem with infections also, but keeping in contact with your oncology team can help that and they prescribed me some antibiotics a couple of times. Julie ... View more

@ Nicole ... you are another one that has been through the mill and i take my hat off to you. I always read about your experiences with mouth wide open and a lot of omg's thrown in. I can relate re being the country patient and also the financial disaster road this disease puts us on. take care Julie ... View more

Hi warriorwoman ... wow and good for you for not accepting what you were first told. My heart goes out to you for all you have gone through and still would be going through. Welcome to the site and hopefully you will gain from sharing your experiece. Julie ... View more

good lord ... are these spammers ever going to stop! Just an alert for admin .................... ... View more

Hi I have had cetuximab and it appears to be used for quite a few cancers now. It attacks the EGFR's of the skin and helps to stop tumours forming. I had via infusion, once a fortnight and mine was comined with radiotherapy also. I can give you a run down of side effects if you want. Not sure about the other info you wanted, although i have read a bit about it ... just dont feel at all qualified to answer - sorry. :) Julie ... View more

Hey Ross How i try and manage that one is to focus heavily on today and cross bridge if and when they happen. We can worry ourselves sick over something that may or may not happen. There is a lot of research going on all the time and in fact i received info on a small clinical trial being held in the uk at the moment. Apparently they are getting some good results ..... :) Take care Julie ps to anyone that reads this ... am away from home at the mo and will reply to messages as soon as i can. ... View more

Hi Sylph My friend is feeling better after her first lot of abraxane. She is going to be having it for 3 weeks straight and then one week off and then back on for 3 weeks again. I am not sure when she will have a blood test or scan, think she told me but i still suffer from a bit of a chemo head ugh!! Definitely fingers crossed and likewise for your mother too. One woman in perth has had fantastic results with the abraxane. Her tumours shrunk by 80 or 85% cant quite remember now and only saw it briefly on the news. My friend is going to try some ginger powder from qld. It will be interesting to see if it helps with digestion. I dont normally go for faddy things myself but this seems like it might just help, even if just a little. ... View more