About Mandabum

Mandabum

Oh, ChrisG23. Your post has hit a chord with me; I feel for you. The answer for me is, you don’t. There are days when you will be strong and positive but there will be days when it is all just hard. And that’s normal. I have recently been diagnosed with chondrosarcoma. I personally try to look at the positive in everything and I’m finding it really difficult most days. I’m relying on distraction - jigsaw puzzles, movies, reading - and finding moments of relief from the pain. I suspect the way to do this is slowly. Take one day at a time. Focus on what you can control. Try to find joy in small things - a sunrise, a cup of tea, or the smile of a loved one. but the truth is, I don’t know. I don’t know how to do this either.

Mandabum

Hi I've recently been diagnosed with chondrosarcoma and will be heading in for limb-sparing allograft surgery in mid-February. The last few weeks have been a bit of a whirlwind of activity, inactivity and a lot of emotions. Right now I'm focused on preparing for surgery and getting things as ready as I can at home and looking for any tips you may have. For the hospital visit (3-5 days), I've made a packing list that includes - lip balm - tissues - non-slip socks - phone charger - kindle - earphones - gum - notepad and pen - hair elastics - hand cream - clothing and toiletries I've bought a bunch of aids as the recovery is likely to be at least 12 months according to the surgeon - toilet seat - shower chair - crutches - height adjustable table for the bed I have an appointment scheduled with the GP later this week to arrange a disabled parking permit. What else do I need to be considering?

Mandabum

Hi Sammy77 I'm sorry to hear your story. While I can't comment on your questions specifically (sorry), I wanted to let you know that you are not alone. I imagine that you are feeling a huge mix of emotions right now. Add to that the travel you have to visit your folks and concerns about spreading germs, it's no wonder that you are struggling at the moment. Have you considered speaking to your GP to get a mental health care plan?

Mandabum

Thanks for sharing your story. I hope you find loads of support here. Your feels are so familiar. I feel an uneasy mix of fear and optimism.

Mandabum

Thanks so much for sharing this. I was diagnosed just before Christmas and this is exactly how I feel (though I haven’t been able to articulate it as eloquently as you have). The people around me are emotional and I’m just numb. I feel useless and unsure about what is going to happen. I feel like the team around me has a clear plan and they’re working towards surgery but I’m so uncertain about what lies ahead. I know this is their expertise and commonplace as part of their work but this is my first time. I have so many questions!!

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