I can relate to every comment here from the last few days. People say to me "you are looking well" , people who dont even hardly know me at all as well as family. My Mum is the best at that, I think it is her coping mechansism maybe.
When inside of me I feel like shit, struggling to even get around the house some days. I get really frustrated and cross with myself cause I cant do the basic stuff. And yes I tend to accomodate others words, thinking they mean well. and they are only trying to encourage you, Somedays you dont want encouraging. Most days I dont feel brave or strong, I just want things fixed, and that aint gonna happen.
With you Samex, the steroids fill my face out a little and it makes me look not so haggard and frail. But the fatigue is phenomenal most of the time.
@ Dianne, yes there is always someone they know who has had it worse or did this or that and it worked for them, maybe you could try that they say. Ha. NO.....
The frustrating thing at the moment is the typing, Bad finger farting this morning they're not pushing the right keys. LOL. I end up back spacing and hitting the keys even harder.
Thanks all for expressing my thoughts in words I couldnt have thought of.
Enough venting for now
Vicki
PS I do have great family support but they cant actually do it for you on the inside.
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