Hi Nash, Love your strength and thank you for sharing your story. I am interested in what alternate methods you believe are working for you. My husband has just finished his first 6 weeks of chemo (temodal) and radiation with no side effects and we are just arguing about him returning to work full time due to him feeling so well. We are about to have 4 weeks off treatment and them go onto the 6 months of chemo for 5 days once a month. We both feel that the surgery is the only reason he is feeling as good as he is and like you think that the radiation and chemo won't be doing much. I feel like I need to be doing more and was wondering if you could give me any suggestions. I really need to stay positive and at the moment are wanting to hear some positive GBM stage 4 stories because I am determined to keep my husband with me for as long as possible. Amy. ... View more

Re: Gbm grade 4 brain tumour My husband ,aged 47 was diagnosed with a GBM grade 4 in April 2010. He awoke with a stiff/sore leg, which progressively became weaker - 36 hours later we received the diagnosis of a brain tumor . He has had surgery, rehabilitation, radiation, chemotherapy & also stereotactic radiation. The initial tumor was on his right side , the second tumor presented below the original site 3 months after April surgery. We were advised that surgery was too risky on the second so continued with chemotherapy & 5 months later had the stereotactic procedure. My husbands left side movement is effected (has been since April surgery) and seems to be gradually deteriorating - he obviously cannot drive but continues to work as this is an important positive in this world of which he now feels he has little control. We have an amazing team of specialists caring for us and our oncologist and GP support us enormously - in that we are so fortunate. That being said though I hate it - I hate that this tumor has taken over control of our lives & changed the man I married. I feel so selfish sharing this because I know my husband hates it too - my greatest fear is what will happen & how. On the outside I am trying to remain positive & I haven't given up hope - but my husband and I are both realistic and understand that this is what will claim him - when is a anyones guess . I am not scared of being on my own but I am terrified of how this may effect our two amazing teenage sons. I seem to have garbled on but it does feel better & reading your posts have inspired me to contribute so for that I thank you ... View more

MissyM, sorry for your lost. Three years and two months is a pretty good time though from my short understanding of GBM. My partner is only a bit over 4 months in after his brain surgery and diagnosed. I do wish he will be with me for a long long time. ... View more

Melissa I am so very sorry to hear of the loss of your Dad. I absolutely love your comment: 'He held me and watched me take my first breath in life.....and I held him when he took his last' That is beautiful and I have never looked at it like that. I held my partners hand as he drew his last breath and would never change it for the world, but your words brought a smile to my face. A smile that rarely shows. So Thank you and thankyou for sharing your journey. I lost my partner to a GBM4 on 8 May 2011. ... View more