How did it all pan out?? ... View more

You need to do what is in your heart. If you feel the need, see a solicitor, they will guide you. The ashes of a loved one is important to the family, to you. Once again follow your heart. When the time is right you will know what to do. ... View more

Hello, I came to realise early in the piece with Pieter that I was working along side the medical staff providing palliative care, at first that scared me but then realised that people diagnosed with GBM are already (once diagnosed) under palliative care. Essentially it is another form of caring. I agree that getting equipment, papers and funeral in order, even if you only start the processes are a great help. Equipment such as the hospital bed, incontinence aids, food supements for when taste buds change or when food becomes difficult to swallow. Power of attorney is great but also make sure all papers are in order (for after) as power of attorney stops the moment someone passes away. Funeral arrangements, Pieter had always indicated a cardboard box and BBQ, but as he progressed Pieter asked if he could have music, then asked about poppy service (having been in defence force), and as Pieter wanted the changes I worked with the funeral director to make sure Pieter got his wishes. Pieter also wanted to stay home, which worked well for him. My children assisted with Pieter' care, with my daughter was with Pieter and I on his passing. You need to do what you believe is the best for you and your family, all of us here understand what you are going through and we can provide information on what worked or did not work for us, but you have to decide your next step. We can only support you in your decision. Our thoughts are with you. ... View more

Hi My name is Femme and the mother of Nicole who was diagnosed with an GBM in Jan.2006(aged 34 then) She is doing great after being told after initial diagnosis her prognosis was very grim, 3/9 months they said. She has proved them wrong as to date she is doing so well, she had the surgery, rad. & chemo so I say to you all ....dont ever give up hope. If you want to read Nicole's story go to http://www.btsurvivor.com/bb/viewforum.php?f=7 and look for Nicole Cheers ... View more

Try calling Cancer Connect 131120. With Cancer Connect they match you up with a trained Peer Support Volunteer. These volunteers (I am one of them) have experienced the same cancer, treatment, or other problems you might have. ... View more

Hi Sue Not heard from you in a while are you ok? Geoff ... View more