I had right off 2 weeks ago w ith unexpected axillary dissection  . Only expected sentine l node, the constant burning in thr underside of my upper arm has put me off for life but lucky i was only small breasted  ... View more

Thanks and will do! **bleep** arm is painful enough as is. Always on fire on the underside of upper arm ouchy ... View more

Dear Madfisher60. Thank you for messaging me. It is comforting to hear from someone with a similar condition though as I understand it mine didn't metastasize into another organ (eg: liver) so no PRRT required. But this wait and see is stressful as you wonder whether they should be doing something to stop future spread given it did metastasize x 3 micro tumours into my lymph nodes. I was cut wide open this time as a previous surgery left me with incisional hernia and adhesions so the recovery from the NETs surgery has been slow.  Most days I wake up feeling awful. I am on a healthy food and fitness regime but I can't say I feel great. Everyone else in the family who follows my regime look and feel wonderful in days/weeks but I struggle with bloating, cramping, constipation or loose bowels, tension headaches, stomach pins and needles, nausea & mood swings ( get upset easily). If I overdo the exercise I hurt for days where the incision is. The surgeon blames my age ( female therefore menopause) and everyone else says I've had open surgery so don't expect so much! It has been 7 months since the surgery and 12 months since I found out I had NETs. I look forward to the day I start feeling better!! As for the support forum, I reside outside a capital city so the closed online forum sounds good. Thank you for passing this info on and I'm glad you are doing well 8 years post diagnosis 🙂 ... View more

Dear Chrissy,, First of all sorry to hear of your unfortunate breast cancer experience and one that you share with so many. Myself back in 2004. like you my Docter was a bit surprised at my choice having the radical mastectomy. Ask yourself, if it is for future peace of mind as well as the identical reconstruction. you will find that all Doctors may slightly differ their opinion but it boils down to you. It is your body you live with. It and it isYour choice. Also I have no regrets. take Care and all the best. Margaret j ... View more

topic says ILC but I know now its IDC. As I said am grade  and having my mastectomy next week. I was thinking, becuase I have become paranoid and have always tended towards anxiety, which is now on a really high scale lol, that I would even ask for chemo; he would prpbably think I was mad!  but honestly I dont think I will handle the checking my left breast EVERY night, I kid you not, I even took a photo of it today so I had a comparison for any visual changes, now thats extreme madness.  I really want to speak up and just say, throw the whole book at me, I dont care how I feel, when its done its done and nothing can be as bad as the mental anguish!   ... View more

thanks Kate, have downloaded the pdf and found it really easy to follow 🙂 ... View more

Hi ellie ..im 54 and 2 months ago i had bilateral masectomy. .before i had it i did research into everthing available. .i then had some councilling. ..my thoughts went round and round because i wanted bilateral and everyone thought i shouldn't. .im here to say i didnt want reconstruction i got beautiful bras with inserts ..best thing i did for myself ...im always even and my scares are clean and neat ...look into every thing first counciling .. bra shops and talk to others.. be happy and comfortable with your choices ...all the best ... View more

Hi Margaret, thanks for the support, I did get my results and it is invasive ductal carcinoma, grade 3 on the Nottingham scale??   ... View more

HI kate 🙂 i have already benefited so much from this site. I saw the surgeon for the first time yesterday and the  decision was a right mastectomy and auxillary nodes. The op will be on the 20th, so 3 weeks time eeeek.  Sometimes I feel a bit calmer knowing what and when it is happening next but then a minute later I may overreact to something really pathetic then cry because I am over reacting and feel guilty. bit crazy lol. silly things. like I often drop things and as a paraplegic I just use my pick up stick to grab them. yesterday I dropped a pen and started to get really angry etc.... always sleepy but I guess it helps the time pass!  ... View more