May 2020
Hi Mate Thanks for your reply as i really enjoyed reading what you said. You come across as a very intelligent man and i must hand it to you for being so strong for your children. You certainly are a family man. Myself my daughter lives in Ireland as she works as a lawyer in Dublin and my son lives in Philippines as he goes to Private school there living with family while myself and my wife came back to Australia so i can continue with treatment. We were suppose to fly back to Philippines but with Corona Virus we have had to stay in our house in OZ while this virus dies down and we can then fly back to Philippines for a few weeks so i can be with our son again then back here again with doctors and possibly more treatment. Your quite similar in a way regarding video games as if i start feeling a Anxiety attack coming on i also get my xbox out and start playing the Formula1 as that tends to work for me or i get stuck into the accounting bookwork of our business back in Philippines as we have a small resort and a few pubs over there. Being away from the business and my son is hard but i manage to use skype and chat. My cancer however is terminal and yes sometimes the anxiety rat trys to sneak its ugly head in and sometimes its hard but i have started meditation now and that works well. Having sinus cancer is a real pain however as you feel every little bit and when the tumour is blocking up your breathing it gets very scary but hey you just have to keep fighting it and keep praying that one day this shall pass. You keep fighting mate and thanks for your message as it meant a lot. Best Regards Trevor
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May 2020
Hi Mate I have head and neck cancer but my cancer started in my p arotid g l and that was removed to now having Terminal Sinus Cancer with mets to my lungs. In 2017 i was told i was going to die within 6 months that was 3 years ago and today i am still fighting cancer and still not winning but i am still alive. However although i have be through the mill of having Chemo for 11 months Cisplatin 9 months of Immunotherapy and 7 weeks of Radiation. My last radiation was in February 2020 lasting another 3 weeks but ever since my last treatment i have completely lost my mind and unsure why all of a sudden i am suffering severe anxiety. I feel like my whole nervous system has been shot. I cant understand why i am so overwhelmed by this now because before i was doing really well and only getting fatigue but picking up really well but this time i am suffering severe anxiety that i no longer sleep in my bed with my wife and everytime she gives me a hug i feel like i am scared that i am being suffocated and cant breathe. Even putting on warm clothes for the winter i hate wearing because i feel like i am being choked. Not sure if you have heard other head and neck cancer sufferers have experienced this but i certainly dont know why i am experiencing this this time round because other times i got through my treatments well. Please let us know your own feelings of fatigue because i am wondering this time did they damage something in my head during my radiation because radiation does bother me a lot as last year my brother during his radiation under his arm caused his lungs to go fibrous and losing my brother 4 weeks after his treatment. He was a healthy man then deteriorated so quickly. This is why i am wondering did the treatment to my frontal sinus with radiation damage some nerves to my brain causing this anxiety. Get well soon mate and keep up the fight. Best Regards Trevor
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May 2020
Hi Caro No problem at all. Sometimes it helps to talk with others who have cancer as it helps to vent out the frustration of having cancer. Mental and phsycological torture i would call it as it never lets up. Ascsoon as something good is happening then bang another problem created. My cancer did spread to my lungs and when that happened my ENT doctor said to me no point in having another surgery to sinus because your going to die anyway. This is the words he said. Now my lungs are good with no cancer on them he still refuses to remove the whole tumour and only takes out enough to help with my breathing from sinus. So now i have taken it all in my own hands and living a healthy lifestyle so tumour cant grow and to keep it at bay. I did have radiation a few months ago but it really knocked me around causing Anxiety with severe panic attacks. I have come to the realisation that you can live with cancer as long as you keep the glucose at bay ie no sugar with plenty of fruits and vegetables. Since i changed my diet i dont get any pain in my sinus but i still suffer bad anxiety. I hope you get on top of your cancer and if anytime you need to chat please do so as it helps to get the frustration and fear out. God Bless Trevor
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May 2020
1 Kudo
Hi All I have been fighting cancer since June 2017. Was given 6 months to live but still alive after 3 years fighting this Sinus Cancer in my Ethmoid and Frontal Sinus with Mets to my left upper lobe of my left lung. The cancer fight was going well up until my last radiation to my frontal sinus region. Since the last radiation 3 months ago i have been suffering serious anxiety and fatigue plus i have lost my appetite. I have become very anxious and worried to eat plus also since the last radiation when my wife comes and gives me a hug i find it difficult to hug my wife because i feel like i cant breathe and suffocating every time she gives me a hug. Doctors currently have me on Oxycontin for the pain which i have been on for a while so it cant be the medications so i am baffled why i have all of a sudden become very anxious to the point of being scared to eat and scared to hug my wife due to this fear of feeling i cant breathe. It has affected my relationship with my wife and i cant understand what is going on with me since my last radiation as i have been through so much treatment i never felt this way before but since my last radiation my fatigue has been severe but now i have this anxiety that i have never felt before. Any advice or if someone has experienced this before it would be great to know how you improved your quality of life because my last 3 months have been hell.
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May 2020
1 Kudo
Sorry to hear about your cancer. I have exactly the same cancer Adenoid Cystic Carcinoma in my Frontal and Ethmoid sinus. I have had nothing but trouble with my cancer as it has put me through so much agony pain and Phsycologically it has drained me to the hilt. I was diagnosed in June 2017 and only given 6 months to live. Now we are into 2020 and i am still alive after 3 surgeries 11 months of chemotherapy 8 months of Immunotherapy and 2 4 week rounds of Radiation. My cancer even still after all these treatments i am still stage 4 with metastis to my lungs. Since my last radiation 3 months ago it has knocked the hell out of me causing me to have serious fatigue and anxiety that has affected my marriage and everything. I can really feel for you with type of cancer and i hope you can knock it on its head. Its a annoying cancer as afterall i was given 6 months to live but i am still here after 3 years. Good luck with it all and stay positive even as when its knocking you around.
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September 2017
2 Kudos
I can't thank everyone so much for the support I get from this site. Having to deal with cancer knowing I may not be around much longer but getting support from everyone who drops a small or large supported message means so much to me. I can't thank you all so much. I will continue my fight until my last breathe. God Bless Chef T
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September 2017
4 Kudos
Hi Sonia reading your message brought tears to my eyes. I never expected so many people out there are going through exactly what i am and its a pleasure to read such a honest view and how to move forward with confidence. You are correct we are not d ad yet and i will continue to fight. I will never give up until my last breath. I have kids and i have a sweetheart of a lady. I just am now trying to focus my energy on them just now to ensure they are secured when i leave to the other side. thanks very much for your message as it meant so much to me. god Bless trevor
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September 2017
Hi Irish8 i am exeactly where you are at at the moment. I have 6 months to live and my partner who is from Philippines flew over to be with me while i am sick and having palliative care. You can personal chat with us anytime you like as it seems we are both going through the same predicament just now. god Bless. chef trevor
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September 2017
2 Kudos
Hi everyone my name is Trevor i am a 49 year old man living in Victoria. I once was the fighting fit chef who worked all over the globe as an Executive Chef until recently discovering that i was getting sinus pain a lot. I went on antibiotics went to many doctors telling me that its just sinusitis for which now i know it is not. I demanded a CT scan that revealed that i infact had a 5cm tumour growing inside my ethmoid and frontal sinus. The problem was this is not where it stopped. Finally my doctor said lets get a full body scan done and test etc with biopsies. After the scans and everything was told to me that i not only have ethmoid sinus squamous cell cancer but i also have 5 tumours on my lungs and rib cage from distant metastisis. My cancer is stage 4 and doctors giving me 6 months to live. I have gone from being a person who works all his life to the man i am now feeling like everything has collapsed around me. Financially emotionally everything. Thought to join this site as i know i am not the only person going through this there must be others who can inspire me to help me get that lift i really need just now. Hope to hear from you all. regards chef Trevor
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