It sounds like a plan, Stan, I mean Sailor.
Good information, plus a clear mind, plus a sense of purpose, gives you the gut feeling that your decisions are the best you can make. All the ingredients must be there, especially the knowledge that you have all the information, the best available information.
As you say Sailor “it comes from what they are not being told, the information they are not getting”. It’s the they that I have a problem with. There is no ‘steering committee’, nor will there ever be one while human nature is in charge. It’s all about empires.
But the information is there, no-one is hoarding it, it’s just spread all over the place. Every newly ‘diagnosed’ soul has to randomly piece together his particular picture puzzle, and assemble his/her resources as best he/she can. This takes time, and time is generally against us, and bad decisions can be, and are made. It’s not a great time to have to learn by your mistakes.
This important conversation started on June 23 and last commented on July 3. Pull me up if this conversation was moved somewhere that I haven’t yet come across, but I’m going to say we have the perfect opportunity, ‘write’ here, on this web site to become a clearing house for useful information. Felix has given us all the tools. Private Groups, to hatch our plans, a you-beaut Search Engine to use to search out all this information scattered through this web-site, Forums, topics, you name it’s all here.
Within an hour of me first entering this website, I chanced on a thread that just in conversation had commented on free Dental treatment. I new nothing of this, and as it happened it coincided with emergency treatment I had booked of which I was not looking forward to the bill. I paid for the emergency, but I had the follow up treatment on Medicare. Thank you Sailor.
Try our Search Engine for dental and it comes up with 8 listings one of them mine, which I attached a link to the medicare website via my Blog. It also gives you in an insight into just how many of us have dental problems and questions about it, with only one specific answer. They just sit there until you search for them.
What do you do with them when you find these answers? You make a Forum Topic called “Frequently Asked Questions”. Once it starts we each add to the growing list. Ideally not a place for chit-chat, but likely to drift off as they seem to do. But it becomes a one-stop resource that can be tidied up from time to time, to remove the verbiage and stick to the facts, and make it more succinct. Like a mini-wikipedia, only without the ability to edit each addition. That is maybe where Felix could help, where some volunteers could act as cleaner-uppers with facilitated editing rights. Could work? Would need Felix.
Even if that’s too hard, a sort of meandering, personalized, one-stop FAQ would still be better than nothing. As well as emoticons , we would all have to learn how to use links 😎 to take us to authored information sites on the web. They are what make information useful rather than just time wasting hearsay. The difference between “….I heard you can get dental treatment somewhere…..” and thanks to Sailor on the 26/3/2010 http://www.medicareaustralia.gov.au/provider/medicare/initiatives/teen-dental.jsp and my contribution on 3/9/2010 on my Blog to the same site: http://www.cancerconnections.com.au/blog/my-bad-hair-day, just in case someone was listening that had missed Sailor’s contribution. The Dental link was appropriately placed under Home>Forum>Lounge>General Discussion>DENTAL. A FAQ could be located Home>Forum>Cancer Journey>FAQ, slotted in between Complementary Therapies and Practical Issues. Practical Issues might be a good home except the wording “Share your experiences” http://www.cancerconnections.com.au/forum would be more in line with FAQ if it was ‘share you facts with links’. That might do it.
Perhaps that is what Felix had in mind with Practical Issues. Maybe I should ask him, should I get a few comments from you folks, that this suggestion might be a good way to get our INFORMATION published in one place. Whaddyathink?
The system works, we just have to make it work for us, and our quest for information.
While I’m on the subject I found a great Website this afternoon on Cancer the insidious explained, for the intelligent layman. Here it is, completely useless tucked away here on Sailors Blog under A Sense of Despair. What cancer is. Try it. http://www.cancerhelp.org.uk/about-cancer/what-is-cancer/index.htm
Oh, and check out my posting on diet at In quest of a more natural diet http://www.cancerconnections.com.au/content/quest-more-natural-diet
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